Oh I am sorry to read your post! What's the next step for you now treatment wise? 

How horrible to be going through this on your own, have you tried ringing the Macmillan nurses? I have to confess I have never heard of germ cell cancer ( I'm breast cancer)  how did your doctor sound about it all? Xxxx

ive got to have my right ovary removed on the 3rd of april and then theyre going to do a wash out where theyll test the cells in my pelvis etc to see if its started to spread then they can decide wehther chemo would be needed and possibly further surgery, at the moment its just confined to the one ovary.

it is a bizarre one id never heard of it myself but apparently its so rare theres 2 clinics in the UK to treat, one in sheffield and one in London, luckily i live in sheffield so i dont need to make an exstensive journey.

As far as im aware its a defect when not all your eggs or sperm go where they are supposed to whilst your developing in the womb and they attach to the outside of the organ so in my case my ovaries and they form into a tumour.

im waiting for a call from my macmillan nurse today so i can talk to her about everything and also see if theres any ways i can stop being so drained and exhausted from the pain all the time its really getting on top of me. 

thanks for your response and i hope youre also doing well!! xxxx

Morning, I googled it, never heard of it before! Please let me know how it all goes? Xxx

id never heard of it myself so i was asking all sorts of questions when i saw my oncologist!, ill keep you updated once ive had the operation :) xxx

Hi I’m so sorry to read your post having support is very important and as advised Macmillan is a good place to start.

My Mum was closed off to my diagnosis and was acting like nothing was wrong with me. I had to finally sit her down and confront her with it. I had to tell her that yes your Daughter has cancer, I’m not well and I need you on board to support me.I don’t know what your relationship is like normally but our was good so I felt comfortable doing this, not sure if this is something you can try with her? 

hi, so sorry to hear youre going through this aswell!!

i think the case is down to the fact she lost my dad 7 years ago to Linitis Plastica (stomach cancer) and then my nan 2 years later (she had breast cancer and recovered, the lung cancer and had the full lung removed, and then she got liver and intestine cancer which spread which caused her to pass away) im not sure if shes shut off because of all the loss shes faced with cancer in the past?

im going to give her some time and hopefully shell open up to me!

thankyou for responding :) xxx

Think you have hit the nail on the head really. My Brother died some years ago, not from cancer, but my Mum has never healed from this, if it is possible after losing a child. 

There were only two of us so I guess she blocked it out because the thought of losing both children scared her so much. That said I needed to make her understand that I need her support and when she saw me cry about it she did a 180 and has been fab x You need support now and so waiting for her to come around is a bit unfair on you. If you can’t talk to her is there another family member who could do this for you? 

Im so upset you feel alone at this time 

Jules

Also how did you get on with Macmillan nurse?

I’m so glad that your Mum is coming around it must have been a shock for her and maybe hard to come to terms with. I’m also happy your M Nurse has helped you. 

That said I’m sorry you have been in pain I know it’s miserable waiting for treatment but you will learn with Cancer there is a lot of waiting and then things seem to happen all at once! I’m waiting again now, I’d finished my treatment and was hoping for the all clear but they found another small lump and so it’s 3 weeks again for biopsy results and it could be nothing to worry about but you can’t help yourself.

keep positive if you can and post here for a little extra support. Here’s hoping the next couple of weeks is a bit better for you pain wise hun xxxx