Goblet cell carcinoid

hi, had my appendix out on 29th January, o got called back two weeks ago to say there was a tumour attached from my appendix to my bowel which is goblet cell carcinoid, waiting for my appointment at the moment to discuss way forward, I’ve done a little research but would be grateful of anyone with similar for a bit of guidance into whst treatment etc they are having, been told already I have to have two parts of my bowel removed

thankyou

Parents
  • Hi I had Goblet carcinoid March 4years ago, I received Hypec Chemo ask your doctor about it, or google it to have a look,I became cancer free in the Sept,the same year,It’s crazy that this cancer is so rare and not a lot of hospitals understand or know a lot about it, however for me I was treated at a hospital in Manchester England, I had a 12 hour surgery they took a lot of my bowel i also had an hysterectomy and my overies remove, and my tummy button along with a few other bits of me. After surgery I began the recovery I thought with the Hypec chemo I would lose my hair but I didn’t, my immune system I didn’t to be honest I only had a sore mouth, but I did feel like I’d been 10 rounds with Mike Tyson, to be expected after 12 hours in surgery, my recovery was great I was so positive always smiling though I felt rubbish I pushed myself everyday, I was so thankful I was alive, The word cancer is enough to scare anyone, so I gathered my family and said if I smile you smile please don’t shed a tear foe cancer, so we had a plan to help each other with smiles, easier said than done you may be thinking, it was the best thing we all did and it helped us all through the worst most fearful time ever in my life. So if you are reading this don’t shed those tears keep smiling

  • I also had cyter reductive 9 hour surgery with HIPEC and 4 months of chemo after. My Goblet cell was found after my appendix burst and was removed. Everything happened so quickly and apparently my case was being talked about all through the hospital as it was so rare. I got the all clear after the major surgery but they wanted to ensure they'd " got it all" hence the 4 months of chemo. I have 6o they bloods and yearly CT scans with the dye and for the last 4 years, have had the all clear. I was told I was extremely lucky my appendix burst or they wouldn't have caught it. I just get concerned as nobody seems to be able to give a definitive answer as to the survival rate after 5 years as in, how likely is it to reoccur? I've tried Google but it's either all medical terminology and/or figures for 5 years and I can't seem to find info pertaining to patients who have been cured. I was told it was curative surgery and the prognosis was very good. I wonder if you know of any info or if your oncologist had any other info on this please? 

     

     

Reply
  • I also had cyter reductive 9 hour surgery with HIPEC and 4 months of chemo after. My Goblet cell was found after my appendix burst and was removed. Everything happened so quickly and apparently my case was being talked about all through the hospital as it was so rare. I got the all clear after the major surgery but they wanted to ensure they'd " got it all" hence the 4 months of chemo. I have 6o they bloods and yearly CT scans with the dye and for the last 4 years, have had the all clear. I was told I was extremely lucky my appendix burst or they wouldn't have caught it. I just get concerned as nobody seems to be able to give a definitive answer as to the survival rate after 5 years as in, how likely is it to reoccur? I've tried Google but it's either all medical terminology and/or figures for 5 years and I can't seem to find info pertaining to patients who have been cured. I was told it was curative surgery and the prognosis was very good. I wonder if you know of any info or if your oncologist had any other info on this please? 

     

     

Children
No Data