Hi I had Goblet carcinoid March 4years ago, I received Hypec Chemo ask your doctor about it, or google it to have a look,I became cancer free in the Sept,the same year,It’s crazy that this cancer is so rare and not a lot of hospitals understand or know a lot about it, however for me I was treated at a hospital in Manchester England, I had a 12 hour surgery they took a lot of my bowel i also had an hysterectomy and my overies remove, and my tummy button along with a few other bits of me. After surgery I began the recovery I thought with the Hypec chemo I would lose my hair but I didn’t, my immune system I didn’t to be honest I only had a sore mouth, but I did feel like I’d been 10 rounds with Mike Tyson, to be expected after 12 hours in surgery, my recovery was great I was so positive always smiling though I felt rubbish I pushed myself everyday, I was so thankful I was alive, The word cancer is enough to scare anyone, so I gathered my family and said if I smile you smile please don’t shed a tear foe cancer, so we had a plan to help each other with smiles, easier said than done you may be thinking, it was the best thing we all did and it helped us all through the worst most fearful time ever in my life. So if you are reading this don’t shed those tears keep smiling

Hi. I'm sorry to ask but do you know at what stage your cancer was at. I've just got back from the oncologist with my mom who has been told after her op that her cancer is stage 4 (she was misdiagnosed for 18 months) it spread from her appendix to her bowel and ovaries. They have removed as much as they can but she now needs chemo but has been told that she will never be cancer free and will live around 2 years

Your post has filled me with some hope that she may be cancer free one day. Also were you treated on the nhs or private as with this type of cancer being rare they dont seem to know much about it.

Thanks 

Hi. I'm sorry to ask but do you know at what stage your cancer was at. I've just got back from the oncologist with my mom who has been told after her op that her cancer is stage 4 (she was misdiagnosed for 18 months) it spread from her appendix to her bowel and ovaries. They have removed as much as they can but she now needs chemo but has been told that she will never be cancer free and will live around 2 years

Your post has filled me with some hope that she may be cancer free one day. Also were you treated on the nhs or private as with this type of cancer being rare they dont seem to know much about it.

Thanks 

Hi Kerry D

How is your mum getting Along?

Hope all is well.

Warm regards x

Hi. Thanks so much for asking but she passed away last year after a 10 month fight and very little help from the doctors.

Regards 

Oh KerryD

I am so sorry to read this.

Unfortunately most doctors have absolutely no idea about it as it is so rare. Most oncologists too.

So so sorry for your loss.

X