Hi I had Goblet carcinoid March 4years ago, I received Hypec Chemo ask your doctor about it, or google it to have a look,I became cancer free in the Sept,the same year,It’s crazy that this cancer is so rare and not a lot of hospitals understand or know a lot about it, however for me I was treated at a hospital in Manchester England, I had a 12 hour surgery they took a lot of my bowel i also had an hysterectomy and my overies remove, and my tummy button along with a few other bits of me. After surgery I began the recovery I thought with the Hypec chemo I would lose my hair but I didn’t, my immune system I didn’t to be honest I only had a sore mouth, but I did feel like I’d been 10 rounds with Mike Tyson, to be expected after 12 hours in surgery, my recovery was great I was so positive always smiling though I felt rubbish I pushed myself everyday, I was so thankful I was alive, The word cancer is enough to scare anyone, so I gathered my family and said if I smile you smile please don’t shed a tear foe cancer, so we had a plan to help each other with smiles, easier said than done you may be thinking, it was the best thing we all did and it helped us all through the worst most fearful time ever in my life. So if you are reading this don’t shed those tears keep smiling

Hi Wendy,

I just wanted to come back and thank you so so much for writing this post. Without the knowledge of your surgery things would look so different for me right now! 

I am 2 weeks post cytoreductive/hipec surgery, , I have had exactly the same surgery and recovering well. 

When I saw your post I went back to my lovely oncologist in Leeds and asked if she knew about this surgery and maybe I needed it too, she reached out to two hospitals and one decided to take me on. The crazy thing is that it isn't standard care to be referred, my oncologist had never even heard of the surgery! She said I have paved the way for anyone presenting with appendix cancer from now on, they will be referred to one of the excellent centres that deal with this type of cancer. Thank God! 

So yes I am so much more positive about my future and to anyone else diagnosed and reading this please please ask to be referred no matter what stage you are at. 

Warmest regards xxxx

Hi Wendy,

I just wanted to come back and thank you so so much for writing this post. Without the knowledge of your surgery things would look so different for me right now! 

I am 2 weeks post cytoreductive/hipec surgery, , I have had exactly the same surgery and recovering well. 

When I saw your post I went back to my lovely oncologist in Leeds and asked if she knew about this surgery and maybe I needed it too, she reached out to two hospitals and one decided to take me on. The crazy thing is that it isn't standard care to be referred, my oncologist had never even heard of the surgery! She said I have paved the way for anyone presenting with appendix cancer from now on, they will be referred to one of the excellent centres that deal with this type of cancer. Thank God! 

So yes I am so much more positive about my future and to anyone else diagnosed and reading this please please ask to be referred no matter what stage you are at. 

Warmest regards xxxx