Throat Cancer

Hi all

 

After reading this day after day I have finally taken the plunge and joined the group.

 

At 37 you don't expect to hear the news you have cancer, but yes that is exactly where I am at. On the 3rd of January I was diagnosed. A day I will never forget, tears confussion and denial! 

 

Finally I'm at a stage where I know it is throat cancer and possible tongue or tonsil. 10 days ago I had the operation  to have the tonsils removed and part of the tongue for biopsy. I have been told it's in one lymph node and HPV16 and classed as very early stages. My consultant has reiterated on several occasions that the only outcome they see is cure, which I know is positive. I have my treatment meeting a week on Wednesday, after my operation my doc confirmed he would still want to do chemoradio therapy which by the sounds of it is absolutely brutal.

 

Here's the problem I have 2 little boys and a beautiful wife and it just freaks me out that I keep thinking the worst with all this waiting yet (like will it spread) everything I read and hear is all very positive news. I myself am quite an anxious person and believe in a straight mind that all will be fine but is this the normal for everyone. Not only I am dreading my 8 year old and wife see there dad / Husband become a frail man for a little while. 

  • The very best of luck, you sound like a decent family man. The Doctors sound positive. There is light at the end of the tunnel.

  •  Hello Jimbo81 My heart goes out to you and your family.... Jimbo i want you to remember that you can and will fight this stinking fight you are about to fight..... i have a son your age and at time 1  little grandson now enjoying the love of a second little grandson thats who got me though all this and the greatest  husband any women could ask for... with the love and strength you have for your wife and children you will... i also had  cancer of the tougne and also in my lynph node  in my  neck but 2 years later here i am. Jimbo there are others here too that i know will help you on your way...stay strong and remember we are all here to help you on your way...god bless xo

  • Thank you  Collier, it's the mess in the head that it all causes. It seems I am one of the lucky ones in a cruel and twisted way. As I keep saying to myself chin up let's fight, have a nice evening.

     

  • Thank you for your kind words Demc. no way will this beat me, I will fight it all the way. As I say, my heart is with my family having to watch me go through this. My wife has been so strong but I can see her heart is broken at times. I then just don't understand why it's me. But on the other hand why is it anyone? I'm head strong most off the time but then emotionally collapse every now and then. I just want to start treatment but to me, everything seems like it's taking so long. 

     

  • I’m a year on from vocal cord cancer and have had 2 ops involving laser surgery and a course of RT. We all are shaken on diagnosis... I fainted ! The one thing that kept me strong was that most of these head and neck cancers when caught early are highly curable. The treatment can be hard but stay resolute and in a years time hopefully you will be like me, cancer free and living life with renewed enthusiasm and gratefulness. All the very best.... any questions we’re all hear to help.

  • Hi Jimbo

    Firstly I am sorry you have had to find yourself here but, you will find understanding and support here, there are many amazing folks on here so you`ve come to the right place.

    Like you I got my diagnosis on 23rd Jan tongue, probable tonsils and palate. Ive had 3 biopsies so far and CT scans. I find out on 14th feb results of any spread and my treatment plan. I had a good idea of the diagnosis following my first maxfac appointment on the 4th Jan the hospital phoned me half an hour later to come back in for biopsy.

    Your team seem to be moving quickly which is a good sign. Your age and physical condition will help you through this. My husband was 57 when diagnosed but he was very fit and drs said that will stand him in good stead and it did.He refused to have a peg fitted so it was up to me to feed him up and honestly he did not lose weight or muscle. Hang onto the knowledge that you will get through the treatment and get back to being the man you are.

    Good luck and best wishes. x

  • Hello Clara

     

    I'm told the team are working quickly even though to me it seems like it's taking forever. On being told I had cancer we got on the phone to find all relevant people to nudge along when needed. Luckily my wife has a private plan for the whole family but the NHS havnt even gave us a chance to use it. The biopsy results are hopefully back so that they can sort the treatment plan. They took quite a big chunk from my tongue and removed my Tonsils all with a Robot. 

     

    So have you and your husband both been diagnosed with the same Cancer? I heard treatment is hard but I just want to get started. I don't want to think about it everyday anymore. It's a long road but we are going to get through it.

  • Hi Jimbo

    welcome to our small exclusive club that no one wants to join 

    breathe deeply it’s really not as badcas we all fear the h o v 16 + is a positive thing to have. I am 22 week,post radiotherapy for tonsil cancer spread to lymph nides 61 year old female diagnised  TN2 N2 NM0 and my oncologists furstvwords we’re cure not just the trestment t. On the 14 January thus year 8 month to date he gave me a piece of paper that read NO CANCER CELLS REMAINED  .

    i have written a blog www.radioactiveraz.wordpress.com giving a blow by blow account of treatment and recovery. I am still in recovery stage but each day gets better it’s nit easy but string family around yiu and positive mental attitude got me there

     

    keep in touch good luck ask away any questions we are all different but between us we have lots of answers. 

     

    Hazel 

  • Hello Raz 

     

    After waking at 3 this morning I took the pleasure of reading your great blog. From what it seems my prognosis will be very similar to yours. Although I have had no legions or anything so hopefully they find the cells after taking my Tonsils out and part of the back of my tongue. 

     

    My consultant said the same almost straight away about cure, no guarantees as they are not allowed but I am on the expected side of the list that will be cured. When I heard that I can't deny, it filled me with optimism. 

     

    I will keep you posted after Wednesday as I have what I believe to be my treatment meeting. Then I'm sure the questions will start. I'm already looking cheats to me get through what looks to be a brutal treatment.

     

  • Jimbo we have one of the most treatable cancers with HPV, I was given 93% success rate which was comforting, the treatment isnt nice but the outcome is positive so stay strong. Im almost 4 weeks post treatment now and im doing well, still some way to go as I need scans and tests in the coming weeks but Im feeling positive.

     

    Dave