Newly diagnosed, breast cancer, struggling.

Hi,

I was only diagnosed last week and struggling a bit. I have two young boys, the youngest being only 6 months, so for their sake, I have just carried on, business as usual. However, I feel like I haven't processed it, or I'm not willing to. They can't see me upset and if I get upset, I'm worried I won't be able to put my brave face back on.

People have asked me what stage I am? Is this something I should know already? I took in very little information last week, just heard the bit where they told me I had cancer.

Also, the lump has defintely got bigger, I keep telling myself it is swelling from the biopsy although this was two weeks ago now, should I tell someone or does this sound normal? I also have really had heart burn that I can't seem to shift and a pain in my shoulder on the same side of my body as the breast lump that won't go away. Has anyone experieced this as something linked or am I just reading too much into how I'm feeling?!

I'm scared and feel out of my depth so any guidance/advice would be most welcome.

  • Welcome, although I am sorry you find yourself on here.

    so your biopsy was found to have cancer, what have they suggested comes next?

    for example.....I was diagnosed a few days before Christmas, had a lumpectomy early jan with lymph node removed. Told margins were clear then radiotherapy then hormones....big turn around last week...now I need chemo. Seeing oncologist this week....eek! 

    You will definitely feel sore after your biopsy, that is pretty normal. Do you have a cancer nurse you can call? She may put your mind at rest.You will now be imagining all kinds of aches and pains, this is also normal. ( we all do it)

    just know that you're not alone in this, this forum is wonderful.....do you have a good support system at home? 

    I expect you will be getting a letter soon with your treatment plan.....the waiting is one of the worse bits....

    come on...we're in this together and we will win xxxx

     

  • Hi I was diagnosed as well last week with breast cancer and have 2 kids. I’m due back tomorrow and not sure about the choices of treatment lumpectomy, hormone therapy, chemo and radiation or I can have my breast removed. I also don’t know what stage and what this meant last week. They don’t think it has spread to lymph nodes but they won’t know until they remove some and my shoulder aches as well. I haven’t processed anything either. You are not alone I’m there with you with the feeling of helplessness. I haven’t told my kids yet as I want to know more about the treatment as waiting is the hardest. Also I’m frightened of losing my hair and my identity and don’t want people feeling sorry for me and treating me different which they are. Whatever happens tomorrow I feel I’m going into battle and am hoping I have the emotional strength for it 

    good luck and let us know how you get on - we can do this Together

    Marie xxx

     

     

  • hi, so sorry about your diagnosis, it really is hard news to hear, I have 3 children and I have breast cancer, I found out on 2nd January, the consultant did not tell me the stage, I had to ask for it, if you speak to your cancer care nurse, they should be able to tell you. I asked for the stage, the grade and what type of breast cancer, I found out about a week after my results what my treatment plan was going to be. It is a rollercoaster of emotions, It took me about 2weeks after hearing the news, for it to really sink in, but after quite a lot of tears, you put on your boxing gloves and prepare yourself to fight it, you will have up and down days, but please remember, treatments have come along way now!  We can beat this!!

    Ellie xx

  • Hi

    i have HER2 positive grade 3 and it has spread to one lymph node only. I am having chemo 6 cycles starting next week over 18 weeks. I am feeling more positive as told it hadn’t spread from lymph node or into any others and told it is curable gutted it had gone to lymph node but just gotta get on with treatment now. It’s a roller coaster I’ve stepped onto but hanging on for the ride and hopefully I will respond to treatment so lump and lymph node shrink before surgery in summer 

    thanks for the support I’m feeling more positive 

  • Thanks for your input - I will have to have radiation therapy as well and hormone tablets. I am gonna try the cold cap as well to see if I can keep my hair and everyone keeps telling me I will be poorly/ill with chemo but I want to prove them wrong I’m ok with it it’s other people who are not and I find their reaction depressing. Luckily I have a few good friends I can count on who are positive like me as nobody knows how I will react to chemo 

    Bring it on xx

     

  • Hi MD 1972,

    I have also been diagnosed recently with HER2 positive breast cancer, I had a lumpectomy and a sentinel node biopsy six days ago, a d am waiting results with fingers crossed it has not reached the lymph nodes, I have been told I will have to have several months of chemo followed by radiotherapy, it's such a lot to take in but like you I am keeping positive, looks like we both have a long slog to Christmas. Family and friends have been fantastic but somehow you still feel alone so it's nice to chat to others that understand because they are all in different stages of going through the same, keep me informed how you get on and good luck to you. I have decided that while I am having chemo I will be choosing a super holiday for a treat next year as I've had to cancel this year's, always need something nice and positive to aim for

    X X 

  • Dbird, 

    I hope I'm the awesome lady your talking about..lol......because your blinking awesome too! It's true, you need someone to lean on, and by eck I leaned on you! 

    It really does help to off load on someone who just gets it....you ladies are just starting out on this and will be able to help each other......and of course we are all here for one another.....this is our safe place....we can say what we want without fear of upset as there will always be someone to come along with a shoulder.....

    please believe us when we say the time will fly.....it honestly does....xxxxx

  • Ha ha ha !!!! Just after I posted I thought.....this might be embarrassing! Yes, my hair is now at the stage where it looks like a crew cut.....I will post you a pic on fb! Xxx

  • can i ask how you are ive just been diagnosed with her 2

    ruth xxx

  • I was diagnosed in Jan 2019 and finished treatment in Oct 2019 and I am absolutely fine back at work and back to normal. I had chemo, surgery and radiotherapy I still ache a little due to being on tamoxifen now for the next 10 years but I'm 48 yrs old so could also be my age. I ride horses, cycle, walk my dog and managed this through chemo. 
    it is scary being diagnosed but HER2 I was told is a common cancer and trust the health professionals they know what they are doing- bless you my darlin it's a journey and a process but one which will soon be over xxx