Hi there, they always give you the worst case scenario but you will find that the chemo is specifically made for you and you may have very few symptoms to report.  It's the fear of the unknown and lots of other people on this forum have asked the same question then posted to say it was nowhere near as bad as they expected it to be   You will have a lot of support from the team treating you, also a dedicated Mcmillan nurse, an out of hours telephone number and a special ward should you have problems out of hours.  So I hope this helps a little bit and eases your worries   Good luck for the future. Carol

Hi Chook

inwas diagnosed with tonsil cancer  and spread to several lymph nodes May last year and give each the all clear 14 jan this year I have to attend e n t for next 5 years and see oncologist every year but am living my life . I am 61 year old femalewho . Is 22 weeks post radiotherapy.its not an easy treatment I had 35 radiotherapy and. Should  have had 3 chemo but ended up with having 2.

i have written a blog detailing my experiences ,but remember we are all different younMay or many nit have some .r  all of them 

www.radioactiveraz.wordpress.com   My blog move to bottom as most recent is the first article.

you will be anxious but once treatment start soon yiu will get through it postive mental attitude helps make use of Macmillan nurses they are there to help. Lots of advise in here and ask any questions we aren’t medics but do have personal experience 

good luck

Hazel

Hi there Chook and welcome to our small but supportive group. There are a few of us here both those whove had tonsil cancer and like me their loved ones who offer words of encouragement and tips to help you navigate what is a long and arduous journey. It is true that the side effects manifest themselves in different ways for different people but there are underlying themes that affect all - pain requiring management, dry mouth, nausea, extreme fatigue,sticky copious mucous and issues with swallowing. The effects are more prevalent if the radiotherapy is directed to both sides of the neck and often mean that alternative feeding methods are required. 

Please dont panic as there is plenty of help to get you througj and we are here to answer any questions you may have. Hazels ( radioactiveraz) blog is great and tells it how it really is so give it a read. 

My hubby was diagnosed with tonsil cancer stage 3 with lymph node mets in Dec 2015 and following chemoradiation and a neck dissection has been in remission for 2 1/2 years so there is definitely hope of a cancer free future.

wishing you lots of luck and come back and let us know how things are going

Emma aka Newlymarried 

You are so kind Carol. I haven't been on this site for a while because I've been reading all the material that the hospital have given me and frightened myself half to death....sometimes I think ignorance of bliss.!!!!!

Thank you for your kind words Emma. I'm not even sure how to use this site so please bear with me.

i had a kidney function test yesterday and it was a horrible experience.  The lady was so kind and reassuring but my veins kept collapsing.!! In the end she had to go in the back of my hand and wrist.  I am now terrified of the next time..!!! 

Also waiting for a feeding PEG to be fitted which is also causing great anxiety.  Can't sleep and it's really taking over my life.  My husband and family are extremely supportive so I do wonder what I'm mothering about...

Hi there Chook 

just thought Id catch up with you and see how your getting in . Have you had your PEG fitted yet. Hope you’re doing ok and drop by and let us know how you’re doing. 

Best wishes

Emma