Hiya Kiki,

Im really sorry to hear about everything your going through at the moment, once they find something wrong like this its like a landslide of emotions as you have to deal with diagnosis then treatement and everything else that comes with it! I was also diagnosed with neuroendocrine cancer which was rare and aggressive so like you everything happened so quickly, I didnt really have time to process anything. Cancer can be such a lonely journey but it doesn't have to be. We are always here when you need support and there is always plently of people who know how you feel and what you're going through. I'm sorry they didn't manage to get it all in surgery and I hope you are healing well. When do you start your chemo? I hope your side effects are as easy going as they can be. Like you I had my surgery first and luckily they got it all but I still had chemo and radio and brachytherapy to hopefully keep it from returning. Any questions you have or anything you want to know I am more than happy to talk about so feel free to ask anything. Remember we are here for you and will help and support you as much as we can, 

Bex 

Hi ya ...

So sorry your on this cancer rollercoaster with us ... 

Bexi has given you great advice and know she'll support you through your journey. . Just wanted to say .. we may have different cancers on here .. but we all go through the same emotions ... and we all get scared at times ... 

So hang on in there ... know your not alone ... and let's all kick cancers butt together ... 

Chrissie x

Thank you Bex, 

I am staying positive but untill they have the MDT meeting I don’t know what next steps will be regarding  the chemotherapy  . It is a real emotional rollercoaster as I feel I have to be strong for my children , family and friends but don’t have anyone to sound off to . Thank you so much for sharing your experiences and your very kind words 

best wishes 

kiki

It’s my pleasure, it really is and it’s amazing your staying positive, some people find that impossible but it really is worth it. I think your doing amazingly, staying strong for your family which is difficult on its own, just remember you have us :) if you ever need to talk please feel free to message me or Chrissie we are always happy to support and help you and just to chat if you like. I wish you all the best in the next steps of your journey, 

We’re always here for you,

Bex 

Hi, 

I have just come across your post and wondered how you are doing Kiki and your husband Bree? My dad has just been diagnosed with neuroendocrine cancer also, he had a lump removed in March from his chest and we were told it was secondary cancer. All scans came back clear and his bloods and hormones so lots of doctors have been studying his case. We recently had the diagnosis of Neuroendocrine tumour and he  needs a Gallum 68 scan I think it’s called to see if they can locate the primary. They have said he is a very very rare case. We have had so many ups and downs the past few months with scan results. I am incredibly close to my parents and have found it very hard to cope with the shock and the emotions that come with a cancer diagnosis. I hope you are both now on the road to recovery. 

Angela