Hi Charn,

I am so sorry to hear about your husband's symptoms. Unfortunately, not all primaries are easy to trace.

His care team seem to have expected to find it in his nasal area, hence the PET scan. It sounds as if this still hasn't shown where his primary is and, this is why they are giving him an MRI tomorrow. This is the gold standard test and, usually shows up clearer images, so I presume that this is why they are going to carry out this procedure.

It is always very worrying when you are waiting for an accurate diagnosis, but there is no point in deciding upon treatment until this happens.

I sincerely hope that the MRI can locate his primary and, that he can move on to treatment.

Please keep us updated and remember, that we are always here for you both.

Kind regards,

Jolamine xx

Hello,

l was diagnosed with secondary cancer in the right lymph node,primary was tonsil,in april2018,l also had extracapsuler spread in the node.

l had 7 weeks radiotherapy,2 chemotherapy,the treatment so far was successful l am also HPV16+.

l am a non smoker/non drinker,the cancer completely took me by surprise,no symptoms only the neck lump,beware when you start treatment the lump on your neck may get bigger due to infection or just reacting to the treatment,but don’t worry my lump did not go completely till week 7 of treatment,

my advice  The treatment is never ending, so take one day at a time and you must finish radiotherapy this is the crucial part of the treatment,not the chemo.

hope this gives you a insight into what is ahead

Hi Charm

inwas also diagnosed with eventually tonsil cancer after SCC found in lymph node she I got the All,clear on Monday exactly 8 monthes from first seeing  my g p .Inhad 35 daily monda to Friday radiotherapy sessions amen 2 chemotherapy met a guy who was diagnosed with nasal cancer and today he got the All clear so don’t despair the waiting is the worst. 

When you are ready inhave a blog www.radioactiveraz.wordpress.com  Read it hope it helps

hazel 

good  luck