Hi Lucy

Well its a terrible situation im 54 triple positive as well.

Diagnosed on the 22/12/20 chemo with herceptin started 13/01/2021 18 weeks of it then surgery then radiation 

Ct scan clear but in two lymph nodes stage 2 grade 2 herceptin very good for her 2 but chemo it tough and ive only had one

no family histiory

what do you think caused it

ruth xxx

No of course I don't mind :) xx

Hi again everyone 

I received my results on Wednesday and have been told I have Grade 1 breast cancer ER positive, but I am still awaiting my results as to whether I am HER2 positive/negative.

I have been booked in for surgery pending the results (if HER2 is negative will have surgery, radiation then hormone treatment, if positive surgery will be cancelled and will have to have chemo 1st).

Im just wondering Ade what your results showed and when are you having your 1st chemo treatment. Reading through everyones experiences I know my breast cancer isn't as complicated as other peoples but I am terrified about the HER2 result as I am so scared about having chemo. 

And to Lucy and Ruth, you two are being so strong. This is just a terrible situation to be in and I am so glad we all have each other.

Amy x

God I have no idea. Bad luck and possibly a bit of extreme stress?! I don't see the point in wondering about what caused it right now as it is happening and is my reality. I think I will be addressing many things in my life as I move forward, although I have a very healthy diet, eat tonnes of veg, don't eat carbs, don't eat processed food, avoid sugar, hardly drink etc. I just think this happens. Many people who have never smoked get lung cancer. Do you feel there is something that caused it for you? 
 

One thing my surgeon did say was that many women are deficient in vitamin D who are diagnosed with breast cancer. I take a supplement during the winter but who knows. Blood test results will be coming back soon. 

Hi Amy,

I have HER2 positive, and my consultant wants me to start with chemotherapy first. I called the cancer nurse last Thursday and she told me I should be starting in 2 weeks. To be honest, I am more scared than you but we have to be positive, please. I will love to go for surgery but because The biopsy was taken from my lymph nodes under my armpit shows it has spread to my armpit. 

So I have to have chemotherapy first before surgery.

I am scared, but I have to keep fighting because of my kids. We will be fine by his Grace.

Be positive. Its well

Hi ellie, so sorry you are having to have treatment again, particularly so soon after you had finished the last lot. That does not seem fair... but cancer isn't fair is it?!

im so scared of putting on weight on the chemo and steroids. I've lost a couple of stone in the last 6 months. Despite this cancer diagnosis I still believe it was down to the change of my diet (did second nature, which I really recommend) and have increased my exercise massively, that I lost the weight. Although I do now have the possibility it was a bit to do with my cancer! Which annoys me! I hope you are able to lose what you need to to have the surgery and that everything goes well for you xx

Hi Amy, glad to hear it is grade 1 and fingers crossed it is her2 negative. I didn't really know enough about this to understand that her2 positive wasn't necessary a great thing... but I am told the good side of it is that it can be targeted with herceptin. So hopefully I will respond well to that! And all the chemo alongside it.

Let us know how you get on x

Hi Annke, sounds like you are in a similar position to me. Lucky us! Have you been told what drugs you will be on for chemo? And have you had scans etc? I have had bone scan, ct and having mammogram and more ultra sounds and biopsy on Tuesday, so still quite a lot to find out. I hate the waiting, although there is nothing you can do to change it. 
 

I think my cancer is also positive to oestrogen and progesterone which makes it triple positive.

how old are your kids? Mine are 5 and 3. 
 

hope you get to start chemo ASAP, I know I just want to get it going although I'm also really bloody scared x

Hi lucy,

I have done all the scans you can think about, three weeks ago. In a week, I had four scans. It was pretty scary, because it made me to question whether it has spread. But thankfully they Said it has not spread to anywhere. ( I call it the fear of the Unknown)

Yes it sound like we are partners in this ( smiles). Don't worry, I pray it has not spread to anywhere. 

My daughter is 13 and my son is 10 years old. I told them everything because it's just three of us and I don't want to hid anything from them.

I told them there will be good days and bad days, but we should all be optimistic that I am not going anywhere. I am here to look after them for a very long time.

Yours are quite young; they won't understand yet, but I think you shouldn't be too emotionally in front of them cos it would confuse them more.

Go for all your scans we will pull through. 

I am waiting for the oncologist to call me in and plan my treatments. They said in 2-3 weeks. This is the second week now; I just want to get it done with TBH. I don't want to lose my hair, but I guess I can only hope and see. 

I am here anytime, we all the support we can get.

Ade.