Oesophagus cancer

Anyone been through this???

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  • Hi LaurenM91

    My husband is currently on a trial for this type of cancer, he has stage 3 with a slight chance of surgery after the chemo and immunotherapy cycles.

    We found the waiting for test results horrendous, he first went to the hospital at the beginning of October, we would wait a week after each test for the results, he finally started his treatment a week before christmas, we're now halfway through, he's not had any of the bad side affects from either immunotherapy or chemo and actually feels that eating is now slightly easier, Still a long way to go and we won't know if he can have surgery until the surgeon has done aother laparoscopy at the ned of the treatment,

    We take each day as it comes, he's still managing to work - fortunately he can work from home - he gets tired a lot and he tends to be 'off' for a day or so after the IV's. 

    Feel free to ask me anything, I'll do my best to answer, i know from our experience that it is a very traumatic time waiting on results

     

  • Hi my husband also has stage 3 oesophagus cancer.  How long did you wait from diagnosis to first treatment? It's been 6 weeks so far for my husband and we haven't had the planning meeting yet.

    Caroline 

  • Hi

    At the moment we don't know the size of my husbands cancer, just that it is stage 3b. So it's in up to 6 lymph nodes. They were concerned about a lymph node near his aorta but it came back within normal parameters. Which isn't quite the same as saying it's normal. So I expect they will keep a particular watch on that area.

    The next results meeting isn't till the 7th of may, so I will get in touch with my husbands cancer nurse

    My husband has signed up for a trial where they give you chemo and radiotherapy at the same time.

  • I hope it goes well for you both Caz68. It took weeks of tests and waiting before we got the size fo the cancer, my husband also has one of the affeced lymph nodes very close to the aorta, it's hte only one the surgeon is concerned about due to it's position. Before the trial it was touch and go as to whether surgery was an option. It's a long hard slog and recovery takes months not weeks so we've been told.

    Hang on in there, if you want to chat feel free to direct message me - if that's possible on here

  • Hi 

    I have sent a friend request. I hope your husband continues to do well.

  • Hi Caz,

    My hubby had both chemo and radiation at the same time.  Chemo every Monday for 6 weeks and radiation each day for 6 weeks.  Hope your husbands treatment works well.

    All the best.  Sue 

  • Hi sue

    Thanks for your good wishes

  • Hi caz

    We got news yesterday that basically its all too late for my dad scan showed his tumour has a hole in it and it has grown upwards and lengthened which would explain his choking n stuff the last few weeks

    Feeling really down as his diagnosis on 28th december and not one try of any treatment to now just wait and make him comfortable 

    Dad is heartbroken and scared 

    All the original feelings towards his diagnosis is back and im feeling more angry and upset than ever 

     

    Xxxx 

  • Hi

    I really feel for you and your dad. It's truly awful.

    My husband is likely to miss the 62 deadline which is making me really anxious.

    Have they offered your dad any pallative treatment?

    Sending Hugs.

  • Hi caz 

    Yes we have already had pallative care since dads diagnosis thry are looking at upping the syringe driver over next few days xx 

  • Hi

    That is something at least. 

    Take care x

  • My dad passed peacefully 2.6.19 at home thank you all for your help and comments these past 5 months x

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