My husband is currently on a trial for this type of cancer, he has stage 3 with a slight chance of surgery after the chemo and immunotherapy cycles.
We found the waiting for test results horrendous, he first went to the hospital at the beginning of October, we would wait a week after each test for the results, he finally started his treatment a week before christmas, we're now halfway through, he's not had any of the bad side affects from either immunotherapy or chemo and actually feels that eating is now slightly easier, Still a long way to go and we won't know if he can have surgery until the surgeon has done aother laparoscopy at the ned of the treatment,
We take each day as it comes, he's still managing to work - fortunately he can work from home - he gets tired a lot and he tends to be 'off' for a day or so after the IV's.
Feel free to ask me anything, I'll do my best to answer, i know from our experience that it is a very traumatic time waiting on results
Hi my husband also has stage 3 oesophagus cancer. How long did you wait from diagnosis to first treatment? It's been 6 weeks so far for my husband and we haven't had the planning meeting yet.
I feel your pain with all the waiting, my husband was diagnosed on 11th November last year and didn't start treatment until 18th December, this would have been longer but he joined a trial for immunotherapy. The trial has worked quite well, he can almost eat normally again, his cancer has shrunk by about 2 centimetres. He is sceduled for surgery this week.
His was stage 3 with 8 lymph nodes affected, hopefully in a few days it wil all be gone.
Hang in there and keep strong, I know everyone says it and sometimes you really want to hit back with something, we've managed to keep our sense of humour throughout and always looked at it positively.
Hope the treatment starts soon for your husband and it all goes well
My brother visited (first time in 12 years) Dad really appreciates it but his behaviour worsened afterwards. I’m wondering if he has brain mets. My step mum phoned and has gone away to her sisters for a week. Dad has a friend staying with him thankfully, he really should not be alone. It’s hard to find out what really is going on as we’re so far away. Dad isn’t the best at answering his phone.
I’m trying to carry on as normal (we’re going abroad in 2 weeks) but it is really hard.
I wish we were nearer so I could be more involved .
Thank you for your concern
At the moment we don't know the size of my husbands cancer, just that it is stage 3b. So it's in up to 6 lymph nodes. They were concerned about a lymph node near his aorta but it came back within normal parameters. Which isn't quite the same as saying it's normal. So I expect they will keep a particular watch on that area.
The next results meeting isn't till the 7th of may, so I will get in touch with my husbands cancer nurse
My husband has signed up for a trial where they give you chemo and radiotherapy at the same time.
I hope it goes well for you both Caz68. It took weeks of tests and waiting before we got the size fo the cancer, my husband also has one of the affeced lymph nodes very close to the aorta, it's hte only one the surgeon is concerned about due to it's position. Before the trial it was touch and go as to whether surgery was an option. It's a long hard slog and recovery takes months not weeks so we've been told.
Hang on in there, if you want to chat feel free to direct message me - if that's possible on here
My hubby had both chemo and radiation at the same time. Chemo every Monday for 6 weeks and radiation each day for 6 weeks. Hope your husbands treatment works well.
We got news yesterday that basically its all too late for my dad scan showed his tumour has a hole in it and it has grown upwards and lengthened which would explain his choking n stuff the last few weeks
Feeling really down as his diagnosis on 28th december and not one try of any treatment to now just wait and make him comfortable
Dad is heartbroken and scared
All the original feelings towards his diagnosis is back and im feeling more angry and upset than ever
We got news yesterday that basically its all too late for my dad scan showed his tumour has a hole in it and it has grown upwards and lengthened which would explain his choking n stuff the last few weeks
Feeling really down as his diagnosis on 28th december and not one try of any treatment to now just wait and make him comfortable
Dad is heartbroken and scared
All the original feelings towards his diagnosis is back and im feeling more angry and upset than ever
I’m so sorry to hear this, I know how devastating this feels, we too lost my father three weeks ago, five weeks after diagnosis. I try and take comfort that he is no longer suffering, but know there are no words.
