Very close Family friend grade 4 brain cancer & how to tell

We have just found out that a very close family friend, whose male & 75, but a very fit male till now, Still owns own business, gets up 5am, walks appox 10 miles a wk, not over weight, non smoker, very limited drinker (only at functions) & only went to doctors because his wife thought he may have had a slight stroke, no pain, minor symptoms as stated below, hes like a grandad to my 2 sons had a brain tumor, he then had an operation & more scans, I think docs said they removed 80%, only symptoms he has are; using wrong words, getting numbers mixed up, forgetting what he wants to say, pauses in between words, NO pain what so ever, he had op last WK, & went back for more results this WK, to be told he had grade 4 brain cancer, incurable & its rapidly growing (not sure if I've phrased that right,not sure if they mean tumor already coming back?) Next route has been discussed & it sounds like quite aggressive chemo everyday (again, not sure how correct everyday is due to upset whilst explaining to us) I dont mean to sound stupid,but I guess incurable means terminal, & chemo is just to help.prolong life, Does any 1 know what life expectancy we are talking here? I've seen lots on internet but dont know what sites to trust, I'm so sorry I'm typing an essay, I'm broken,I can't think straight, WHAT do I tell my sons age 10 & 14, some people are saying be honest & open, but I dont want my boys wondering/thinking if this day or that day is going to be his last,their doing so well in school, & 10yr old is so sensitive & a deep thinker, I so stuck on what to do, has anybody got any advice regarding both issues, A) The brain cancer as stated above & B) what & how to tell my boys. Once again, many apologies for typing so much, but honestly its kind of helped a little, its quite therapeutic. Regards, B

  • Hello RLH40; welcome to the forum.  Sorry that your close friend has become so ill with an incurable brain cancer.  As a general rule the NHS website (link attached) and the section of this website relating to brain cancers  (link attached) are reliable in terms of information.  However, like so many cancers, the way people respond to treatment and the life expectancy can vary greatly from person to person.  Sadly, there will be others reading this forum who will have more personal experience of a brain cancer than myself and who will be willing to share their experiences.  Do you know what kind of brain cancer it is?  I realise that you may not have all the detailed information.  Yes, it does sound like the tumour is coming  back with a vengeance I am afraid; the chemo might slow it down.

    www.cancerresearchuk.org/.../survival

    www.nhs.uk/.../

    Regarding your boys I would say be honest.  If they have not done so already, they will realise something is bothering you and may be wondering what it is.   Generally, it is best to be upfront. Look at this way, when you friend's health deteriorates they are going to notice it and they may want to know why they were not told earlier.  There is really nothing to be gained by waiting; tell them now and they will adjust to the information and may be of help to you in dealing with this sorrow in the (extended) family.

    Best wishes from Annie

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    Hi RLH40,

    I have replied to this in your other post.

    I agree with what Annie has said about the boys.

    Kind regards,

    Jolamine xx

  • Thank you so much for replying to my post, I really do appreciate it, I typed it early hours of this morning due to being unable to sleep, I've had anger, frustration, emotions of all kinds running through my head, to be honest, as soon as we knew it was a tumor I knew something wasn't right, as many years ago both my uncle & 2nd cousin had brain tumors, they had so much pain, & were operated on within hours, they were not cancerous tumors on them, but soon as I knew we had to wait for an operation, & nobody was saying much, deep down I realised it had to be different from my uncles' & cousins' tumor.

      Thank you for advice on my two sons, I lost both of my grandads in the same year to cancer when I was 11yrs old, & my parents told me everything & I must of coped because I'm here to tell the tale, obviously funerals were hard & knowing I'd never see them again really shook me, but I continued with school & adulthood. I think I will sit them both down & have a chat, they know he's very I'll already, its just the terminal issue I'm afraid of telling them, he's like a grandad to my sons & a 2nd dad to me, he actually does more for my sons than their own grandad (on their fathers side), my parents are still here & fab with them, so I may enlist my parents to be at the "" chat"" too.

    Sorry I've written so much, once against , many thanks Annie,

    Love From Bex XxX