Hello. My first post. My 54 year old husband has recently been diagnosed with locally advanced prostate cancer. It's broken outside the prostate and into the seminal vessels next to it. His PSA is 33. We have had conflicting prognosis from a consultant ( not my husbands usual one due to a mix up. He even asked why we were there and we said results of his scans and biopsy! ). Also the macmillan nurse who called my hubby the following day. The consultant said its very unlikely it can be cured but are aiming to manage it. His Gleeson score was 7/8. Also he is to start hormone therapy tablets and injections straight away followed later on by chemo. The macmillan nurse said they ARE aiming to cure this. His Gleeson score is 7 and hormone therapy will start then followed by radiotherapy. His head was all over the place at the time he failed to notice the conflicting prognosis. My husband called the hospital to be told the nurse assigned to him is on holiday now. Someone else will call him back Monday. His results should of been given by his consultant but the letter (sent 2nd class 3 days before) arrived the same day as his appointment in the afternoon, the appointment was that morning. They had his mobile/home numbers, they should of called him! The appointments department then offered him 3rd Nov when he called to complain. He said its been 7 weeks of tests and scans and he's not waiting that long for results. So that's how we ended up with this consultant as it was next available. We have to dig deep to fight this. I lost my daughter aged 20, hubby's step daughter, nearly 6 years ago to a cruel degenerative brain disease. It took everything from her over time. I gave up work to be her full time carer. I'm scared this will happen all over again.
