I feel exactly the same my mind is in a very dark place while everyone around me has been so good and loving I'm not sure I can carry like this

Hello David,

                     you are not alone in feeling this, l hated mine with a vengeance and initially only grudgingly accepted it due to the promise of a reversal,not that l had a lot of choice awaking from the op to find it in situ.

                   After the first week l decided to get on with it and with life and in my mind it became easier.But then my body decided to get in the way and throw a very large spanner in the works.My stoma site became raw, inflamed and bleeding so l was having to wipe blood off in the hope l could get bags to stick to raw tissue.l could cope with the pain ,but bags coming constanly adrift was a continuing nightmare.l am very sensitive to tight things on my skin for any length of time and cannot wear watches,rings ect for more than a few hours at a time before getting a reaction,even plastic,rubberbacked watch cases  and cloth and leather straps cause swelling and irritation. Coupled to the fact l was still distended from liver surgery six weeks before the bowel op,and the stoma site was really poor when everything settled down

                                                                  l had no choice but to soldier on for what seemed like a lifetime but was in reality 14 months for a reversal.That in itself has taken 5 years for the bowel to finally settle down to somewhere close to normal.Eventually l found myself leaving good attached bags on for as long as possible by emptying and flushing them out,to avoid opening up broken skin constantly

                                                            My thoughts are that iving with a stoma bag has it good points,lack of public toilets ect ,and that given that it was a lifesaver,it helps with your perception eventually.But l found myself constantly thinking that surely a better attachment solution could be found than the precarious one in use at present. hopefully one day it will come to pass.

                                                                                                                   But through it all l have carried on with life and personal achievements and am very grateful to those who gave of their very best to make my today possible,

                                                     David

Hello David,

                     you are not alone in feeling this, l hated mine with a vengeance and initially only grudgingly accepted it due to the promise of a reversal,not that l had a lot of choice awaking from the op to find it in situ.

                   After the first week l decided to get on with it and with life and in my mind it became easier.But then my body decided to get in the way and throw a very large spanner in the works.My stoma site became raw, inflamed and bleeding so l was having to wipe blood off in the hope l could get bags to stick to raw tissue.l could cope with the pain ,but bags coming constanly adrift was a continuing nightmare.l am very sensitive to tight things on my skin for any length of time and cannot wear watches,rings ect for more than a few hours at a time before getting a reaction,even plastic,rubberbacked watch cases  and cloth and leather straps cause swelling and irritation. Coupled to the fact l was still distended from liver surgery six weeks before the bowel op,and the stoma site was really poor when everything settled down

                                                                  l had no choice but to soldier on for what seemed like a lifetime but was in reality 14 months for a reversal.That in itself has taken 5 years for the bowel to finally settle down to somewhere close to normal.Eventually l found myself leaving good attached bags on for as long as possible by emptying and flushing them out,to avoid opening up broken skin constantly

                                                            My thoughts are that iving with a stoma bag has it good points,lack of public toilets ect ,and that given that it was a lifesaver,it helps with your perception eventually.But l found myself constantly thinking that surely a better attachment solution could be found than the precarious one in use at present. hopefully one day it will come to pass.

                                                                                                                   But through it all l have carried on with life and personal achievements and am very grateful to those who gave of their very best to make my today possible,

                                                     David