Not coping with stoma bag

I’m 39 years old and on 20th Aug I was told I had bowel cancer. I’ve just returned home from hospital after lower anterior operation and have a bag, which I pray can be reserved In a year.  I’m really struggling with my stoma, even looking at it makes me feel ill. I’m wondering how I’m ever going to cope.  I absolutely despise it all and changing my bag is just horrifying. My husband has had to change it for me since we’ve got home and I just feel humiliated by the whole thing.  Will it ever get easier? Will I be able to cope on my own and accept it? Just wondering if anyone else felt like this! 

Parents
  • Totally impressed with your husband! My husband has had a bag for 2 years and just had an unsuccessful reversal op. I hate the thing with a passion. One of the most repulsive things I've ever seen. Can't look at it,  get near it or anything. Had counselling which didn't help. So now we're looking at platonic for ever. Yes, I know I'm an utterly selfish unfeeling b. But can any partners help?

  • Hi, just been reading the posts.

    I had to have a stoma January last year due to rectal cancer. A long term crohns sufferer I had been avoiding a stoma for years then had no option. The stoma I dealt, the extra things due to how the cancer has spread,  greatly affected our marital relations that was much harder to deal with. You can get patterned covers for the stoma bags men and women it might help. I got a sexy black lace one!

    However, 1 year on had all treatment following the operation and I am cancer clear, a tremendous burden lifted so we are working together on solving the other issues. I am just grateful the surgeons moved fast and I am alive to tell the tale.

    Obviously it is not all plain sailing and I had hiccups with the stoma, however travelling you can get assistance from the information office and get a daisy lanyard which identifies you as needing assistance  boarding etc. Fantastic shorter walking route etc for boarding and speedier security. The airlines will also help with seating etc when you advise them at booking or you contact them later.

    travel insurance I sort advice from Macmillan who have a list of companies to try, it was more due to the cancer but with time should reduce in price.

    I have been abroad twice in 6 months you can take an extra carry on bag with your supplies so no worries there.

     

    Hope this helps, a positive attitude and humour  helps create acceptance and support from others makes having the stoma more 'normal' 

     

Reply
  • Hi, just been reading the posts.

    I had to have a stoma January last year due to rectal cancer. A long term crohns sufferer I had been avoiding a stoma for years then had no option. The stoma I dealt, the extra things due to how the cancer has spread,  greatly affected our marital relations that was much harder to deal with. You can get patterned covers for the stoma bags men and women it might help. I got a sexy black lace one!

    However, 1 year on had all treatment following the operation and I am cancer clear, a tremendous burden lifted so we are working together on solving the other issues. I am just grateful the surgeons moved fast and I am alive to tell the tale.

    Obviously it is not all plain sailing and I had hiccups with the stoma, however travelling you can get assistance from the information office and get a daisy lanyard which identifies you as needing assistance  boarding etc. Fantastic shorter walking route etc for boarding and speedier security. The airlines will also help with seating etc when you advise them at booking or you contact them later.

    travel insurance I sort advice from Macmillan who have a list of companies to try, it was more due to the cancer but with time should reduce in price.

    I have been abroad twice in 6 months you can take an extra carry on bag with your supplies so no worries there.

     

    Hope this helps, a positive attitude and humour  helps create acceptance and support from others makes having the stoma more 'normal' 

     

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