Hello Digby, I've just come home from hospital after been given virtually same diagnosis as you and same proposed treatment plan. I was 8% risk of developing cancer in next 4 years and 28% in next 20 years? ( I think, I was taking in a lot of unexpected information) Anyway, I wondered what you did- did you have the hysterectomy? Why did they recommend loosing ovaries? If you had the operation, how were you hormonally? It's not the op that worries me, it's the hormone adjustments I'm worried about..

all contributions welcome 

Hi, I'm two weeks post-op from an abdominal hysterectomy with removal of my ovaries, tubes and a rather large (melon-sized) fibroid in the mix.  My post op test results have just come back and confirmed that I had complex hyperplasia with atypia.  I'm 46 and my mother died from endometrial cancer.  So now knowing the confirmed results I feel like I've dodged a bullet and absolutely made the right decision re the op.

 The first two weeks have been painful but manageable, however I was home two days after the op and am managing to do most things independently now.  I've been out doing short walks for the last week but have been careful with lifting etc.  I'm not sure the hormone changes have fully kicked in yet but I have started feeling overly hot at night so I think I'm getting them now!  I may visit my GP in the next fortnight if the symptoms get worse.   Hope all goes well with you x 

Bless you for getting back to me- I really wish you well with your recovery. I just wish I had a crystal ball to help make my decision. I think I am going to wait until after my next biopsy and take it from there. I wonder if I can keep my ovaries. I've never wished I had the menopause already but it would make all this so much easier .

lots of rest to you! 

Good morning everyone 

I had a polyp removed and the biopsy was thst I have complex hyperplasia with atypia. 

I'm a little concerned that the NHS will take to long in the light of the impact of Covid-19 and our health services and I will have to wait too long.

I just want it to be managed asap I only found out last week so I'm still reeling a little from that news.

I too worry about how I will be after a hysterectomy especially hormonally. 

I hope you are all ok.

Hi there

try not to worry. Have you been able to speak to your GP ?

i was diagnosed 11 years ago with it & I've been using the Mirena coil ever since, thankfully it has been doing the job so I still have all my bits in tact.

Unfortunately my periods have returned & are getting longer & heavier again so while I'm waiting to speak to my gynae, my GP has given me the progestin only pill will also works to thin the womb lining.

Take care

Thank you

That has made me feel better.

I was under the impression that with atypia you needed an op of sorts to remove it.

I am so glad to hear youre ok.

The bleeding is s nuisance.

I lost so much blood with my polyp I had to have blood transfusions.

I  appreciate you taking the time to respond.

Kendra

Thank you

That has made me feel better.

I was under the impression that with atypia you needed an op of sorts to remove it.

I am so glad to hear youre ok.

The bleeding is s nuisance.

I lost so much blood with my polyp I had to have blood transfusions.

I  appreciate you taking the time to respond.

Kendra

Hi Kendra

I also had polyps with mine so I can sympathise.

Regarding having an operation, I think it depends on your personal circumstances plus which gynae you see, I've had 2 say no to a hysterectomy & 1 say yes ! Unfortunately there isn't much info out there on the condition because most women have a hysterectomy, so it's all a bit of an unknown for me, my gynae wants me to have an annual check up & biopsy until I've been through the menopause - I'm 46 so who knows when that'll be.

Take care

Hi there 

Im 54 and apparently in menopause!

Although I still get periods.

Take care sweetheart.

Kendra 

Hello,

I've just got a diagnosis of complex endometrial hyperplasia with atypia. They have also discovered some precancerous and suspicious cells - so need to have another biopsy.

Pretty scared at the moment as it's likely that i'll have to have a hysterectomy. 
 

Hoping that this has not turned into cancer. But understand the it's really treatable.

I’ve was diagnosed with complex hyperplasia with Aytipia two weeks ago and I have to have a hysterectomy. Must admit I am a little bit worried but I know it’s what I need because my sister had womb cancer and my aunty did too and also lunch syndrome. Hopefully you will get some answers soon x