Complex Hyperplasia with Atypia

Hello everyone 

I have just join to the forum today. My age is 51 and has a  25 year old son.Three weeks ago I had a hysteroscopy and polypectomy. Unfortunately the histology has demonstrated complex Hyperplasia with Atypia. There was no evidence of any malignancy although I had been explained that there is a 30% chance of developing endometrial cancer which has not been detected on the recent biopsy. I have been suggested to undergoes a laparoscopically assisted vaginal hysterectomy and bilateral salpingite-oophorectomy and peritoneal washing. 

If anyone has gone through what my Gynaecologist have suggested me please do give me some advice.

 

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  • Hey Digby, I was in a similar position to you earlier this year. Post meopausal bleed, various tests including d&c and hysteroscopy. Initially told complex hyperplasia with atypia in the womb lining. My consultant said out of 100 women with this condition, 40 will go on to develop endometrial cancer during the following 20 years. (Some figures suggest this is on the high side, but he was very believable.)

    Heck, my babymaking days are over. I'd hoped to avoid a hysterectomy, especially when waving my ovaries goodbye. It seemed the only sensible thing to do. Everyone needs to make their own decision.

    So I had the op you've been advised about in mid February this year. Honestly I felt better during the first couple of days than I did after having my apendix out five years ago, 

    I'm not the fittest person around, but I did have a pretty good recovery. I found a useful website called Hystersisters, an American based site so not everything is relavent to UK practice. Although it's useful , be careful not to get carried away reading too much, people tend to post if they have a problem.

    Post op my main issue was constipation, jeepers, I took the meds offered and drank lots of water, it still took a while to get back to normal. Your insides get moved around during the op so everything needs to settle into a new position. 

    So I'm six months post op. I do get twinges if I lift heavy things. Overall I feel fitter than I have for quite a while, going for more walks, I'd read that ladies on average put on 27 pounds in the year following hysterectomy, I've lost more than that. I do feel hungry a lot more than before, but so what? 

    Any doubts I had about the operation were put aside when post op reports showed grade 1 cancer in the womb lining. Of course there's no way of knowing what your results would be. I was trying to avoid future problems when I actually had cancer. No further treatment was needed in my case, I have open access to clinic with any concerns rather than regular checkups. I opted to have surgery because  I thought well I'm 58 and not going to get any younger. Really glad I went.

    regards, gamechanger

Reply
  • Hey Digby, I was in a similar position to you earlier this year. Post meopausal bleed, various tests including d&c and hysteroscopy. Initially told complex hyperplasia with atypia in the womb lining. My consultant said out of 100 women with this condition, 40 will go on to develop endometrial cancer during the following 20 years. (Some figures suggest this is on the high side, but he was very believable.)

    Heck, my babymaking days are over. I'd hoped to avoid a hysterectomy, especially when waving my ovaries goodbye. It seemed the only sensible thing to do. Everyone needs to make their own decision.

    So I had the op you've been advised about in mid February this year. Honestly I felt better during the first couple of days than I did after having my apendix out five years ago, 

    I'm not the fittest person around, but I did have a pretty good recovery. I found a useful website called Hystersisters, an American based site so not everything is relavent to UK practice. Although it's useful , be careful not to get carried away reading too much, people tend to post if they have a problem.

    Post op my main issue was constipation, jeepers, I took the meds offered and drank lots of water, it still took a while to get back to normal. Your insides get moved around during the op so everything needs to settle into a new position. 

    So I'm six months post op. I do get twinges if I lift heavy things. Overall I feel fitter than I have for quite a while, going for more walks, I'd read that ladies on average put on 27 pounds in the year following hysterectomy, I've lost more than that. I do feel hungry a lot more than before, but so what? 

    Any doubts I had about the operation were put aside when post op reports showed grade 1 cancer in the womb lining. Of course there's no way of knowing what your results would be. I was trying to avoid future problems when I actually had cancer. No further treatment was needed in my case, I have open access to clinic with any concerns rather than regular checkups. I opted to have surgery because  I thought well I'm 58 and not going to get any younger. Really glad I went.

    regards, gamechanger

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