No to tongue surgery, yes to radiotherapy ? Your experience

 

I am 72, diagnosed 3 months back with tongue cancer, level 3 …I was given 3 options of treatments a)surgery (60% tongue to be removed)  b)high dosage radiotherapy (HDR) c)low dosage radiotherapy (LDR) I am opting for LDR 

Our (wife/myself) outlook in life is it is better to have x months as I am (I can swallow/speak) compared to having surgery living a life of y years being morbid (no swallowing/no speech). Naturally, if the tumour was elsewhere like skin, etc, we will choose surgery. We have met 8 peer patients who had surgery and none of them looked happy.

  •     Hi Anil12,

     I think these things are different for everybody and depend on your mental state and ability to

     weather the storm. All I can do is tell you of my experience and feelings.

     I an 82 now, I was 71 when I was given the news - actually on my birthday.

     The Professor ( One of the top 2 in France) said its cancer - you have six months (long pause)

     or an operation 6 plus hours with a 50/50 chance of another 5 years. or you can go home with

     a lot of morphine.

     I was surprised how unruffled I felt and opted for the operation.

     He explained what would be done.  -- cut through my chin and carry on down each side to the

     back of my jaw and then down my throat on each side. This would allow them easy access to

     my tongue.  

     I would not be able to talk or eat! 

     I had the Op 2 weeks later. I came to in bed with a tube up my nose and a trachea tube

     in my throat.

     All of which sounds pretty horrid - but I suffered no pain at any time.  I was in hospital for 3 weeks

     one of which because I picked up a blood infection.

     I was very fit prior to the Op. which helped a lot.

     When i got home I was very weak and going for radio therapy was hard work. I could only walk

     about 100 yds and then had to stop and recover. This of course improved over time. I had 

     6 weeks of daily RT (weekdays only) and chemo on fridays. I was lucky that this gave me

     no problems.

     As soon as I was able I started taking brisk walks (about 3 kilometers). We live in the countryside

     in France.   As I walked I looked at the view and was glad to be alive.

     My wife has been very supportive through all this which helped a great deal.

    In case you think I may be too dim to be worried - I have an IQ of 140.

     How you cope with it I guess depends on your personality - I am a fighter.

     I can make myself understood to my wife and close friends - but they have to concentrate.

     I cannot eat but I can manage small sips of 20% wine 80% water.

     I have no regrets with my choice - Life!

     Hope this helps. - Good Luck

     Colin          

      PS. They removed my soft pallat which accounts to a fair degree with my speech and eating difficulties.

     

  • Colin Thank you for sharing the expereience. I must say that you are brave, positive and helpful.

    1)I agree we all have different opinions, but it is by sharing, we choose the one we think is the best.

    2)SIMILARITIES I am postive, fit (still jog/walk 5 kms a day),

    supportive wife, fighter in most cases, etc

    3)If low dosgae radio therapy works, reduces my tumour by x%, allows me to speak/swallow, say for 12 to 24 months, then let the final curtains come down. If LDR does not work, I will go for the surgery.

    4)I am 95% sure what I am doing, but still open to other views.As i read, what kill in most cases are the side effects 

    God Bless

    Anil