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Need some advise

Tassel
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Hi all, came across this forum sometime back when i was diagnosed with Tongue & Lymph Cancer. Had some quries and your you folks expertise here. Below is my case:

I had an ulcer on my right side of my tongue and was not healing. It was later diagnosed with Tongue Cancer in Jan this year. My Doctor remove part of my tongue and all the lymph node on my right side of my neck. 2 of the lymph nodes were found to have cancer cells. My doctor wanted to continue with Chemo + radiatherapy. However, i had a kidney transplanted to me abt 25 yrs ago (My kidney failed and my dad donated one to me), therefore he decided to go ahead with only Radiotherapy as Chemo will damage my only kidney.

My radiotherapy ended in early May. Everything was fine till about 2 wks ago.I felt pain on the back of my right side of the tongue & throat. That lead to pain in the ear and headache. It happend when i cough or swallow something pass the painful area. The pain can be really very bad. It did not hurt as much when i am doing my RT. I visited my doctor, he did a scope thru my nose and say that he did not see anything abnormal except there is slight inflamation at the throat. He ordered an MRI for me which is this coming Friday.

Anyone has this type of pain?

  • Hi Tassel and welcome to Cancer Chat.

    I'm sorry to read of the pain you've been experiencing in the last two weeks but I'm glad you went back to your doctor to let them know and that further tests are being carried out to find out what the cause may be.

    Hopefully some of our tongue cancer members will pop by when they can to share their advice and experiences with you but in the meantime I just wanted to wish you good luck with your MRI today and let you know I will have my fingers crossed that they can get to the bottom of this so you can be pain free again soon.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Offline in reply to Moderator Steph

    Hi,

    Juz to update u folks. After the MRI, it should something is under my tongue. My doc send me for a PER CT, and it show there is a tumor under the rigth side of the tonge, it is pressing on the nerve. Hence i am having the pain.

    Did an op to remove the tumor under the tongue in beginning of Aug, doc also took part of my chest muscle and tunnel it up to replace my right side of the tongue.

    Went for a review last week, doc feel there is another lump on my right side of the neck. He did a biopsy and i had another CT scan on last friday. Will be reviewing the results tomorrow. My doc said higher is another lymph node affected an need another op. He say it is rare that the cancer spread fr left to riight side. Anyone hv any idea abt this?

    I am taking it pretty ok.....but my wife is not taking it very well. I dont know how i can help her.... coz she said that she dun dare to cry in front of me or tell me her feeling as she afraid that her negative vides will affect me. I told i am ok... her neg vides wont affect me... as i belive i am able to overcome all these. It really hurts me to see her suffer this way.... Any suggestion on how i can help her?

    While typing this, juz received the call fr the clinic, they say that result not good and doc would want operate on me next week. Tomorrow i will still go to the clinic to let doc explain the results. I am really afraid of my wife unble to take it as i hv always been her pillar of support.

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