Hi there ...

That's such great news ... we need good story's on here as it gives others hope ... there's a few others on here pushing the boundaries... so I hope you go from strength to strength and take every new day as a bonus ... take life by both hands and make the most of your future ... 

So from across the pond (Atlantic)  great to have you on here ... Chrissie   ; ))

Hi, thank you for posting. I've just been diagnosed with NMZL again quite a rare nhl. About to start R-CVP, a wee bit anxious but it has to be done. How did you find the rituximab infusion, I was told it could take up to six hours the first time I have it. If everything goes ok I will take the chemo tablet in the house and only have to go to hospital once a week for three weeks then a week off. I avoid a paracetamol tablet for a cold so taking all these drugs are freaking me out a bit. I will have to take 70mg of steriods when taking the chemo. What drugs did you take?

I am a 37 year old male and was diagnosed with SMZL last July.

My symptoms at the time were persistent mulcers and upon investigation I was found to have a high WBC count.

My spleen was enlarged at 17cm and I have bone marrow involvement. 

I for the past 12months I have  bèem on watch a wait with regular blood tests. My WBC count has steadily risen to 34 with all other counts stable.

I know I will need treatment in the future and feel fine at the moment.

I have found it realy hard to find any current research and anyone in a similar position as me to talk to.

I read your post and was wondering how you was getting on?

Regards

D