Vulva Cancer

Having only 3 weeks ago been diagnosed with Vulva cancer 3 weeks ago I’m finding it hard to explain and even say that I have Vulva cancer. I have said I have cancer in the groin area instead as no-one really knows what or where the vulva is. I didnt until they told me its all the external sex organs. Not like cervical or breast cancer that people have heard of and know about. Im due for surgery in 8 days and know they are going to remove a large piece of my flesh so I’ll end up looking and feeling less woman like. I didnt even know you could get it there but i suppose cancer can appear anywhere. It has impacted on me both mentally and physically. Because it is where it is every time I go to the toilet and wipe myslef I can feel the tumour, its like a constant reminder, and the pain is excruciating. I’m going to see my doctor tomorrow as it is getting more painful day by day and I don’t want to to go over my daily amount of painkillers as I dont want to become resistant to them. I’m finding it hard mentally as no-one gets ‘your’ cancer as they haven’t got it and I don’t know anyone else who has cancer. I knownpeople tell you to be strong and fight it, thats what I’ve been doing, but its hard keeping that face on. My son came to see me this weekend and it was the hardest but the best day I’ve had for a while. I had to keep it together but I suffered afterwrds. 

Parents
  • Hi SamB123, just to let you know I'm thinking about you. I recently had a total hysterectomy, including ovaries and tubes,due to possible pre- cancerous womb lining. Turned out to be grade 1 cancer. At least people understand the words used for this. (Not that I've told many folk.)

    It does seem the English language is a bit lacking, or under used, for lady parts. I've heard "down below" and other phrases that seem too silly to use in a serious situation. Perhaps just say between your legs? Or genitals? I'd guess that saying it's a female cancer would stop most people asking any more deeply. It's your call how much you choose to disclose. Maybe admit that you find it awkward. Or practice saying something you're comfortable with.

    I can't imagine what you're going through. Please believe you will cope, you will get to a better place. People do want to help. 

    Kind regards, gamechanger.

     

Reply
  • Hi SamB123, just to let you know I'm thinking about you. I recently had a total hysterectomy, including ovaries and tubes,due to possible pre- cancerous womb lining. Turned out to be grade 1 cancer. At least people understand the words used for this. (Not that I've told many folk.)

    It does seem the English language is a bit lacking, or under used, for lady parts. I've heard "down below" and other phrases that seem too silly to use in a serious situation. Perhaps just say between your legs? Or genitals? I'd guess that saying it's a female cancer would stop most people asking any more deeply. It's your call how much you choose to disclose. Maybe admit that you find it awkward. Or practice saying something you're comfortable with.

    I can't imagine what you're going through. Please believe you will cope, you will get to a better place. People do want to help. 

    Kind regards, gamechanger.

     

Children
No Data