Vulva Cancer

Having only 3 weeks ago been diagnosed with Vulva cancer 3 weeks ago I’m finding it hard to explain and even say that I have Vulva cancer. I have said I have cancer in the groin area instead as no-one really knows what or where the vulva is. I didnt until they told me its all the external sex organs. Not like cervical or breast cancer that people have heard of and know about. Im due for surgery in 8 days and know they are going to remove a large piece of my flesh so I’ll end up looking and feeling less woman like. I didnt even know you could get it there but i suppose cancer can appear anywhere. It has impacted on me both mentally and physically. Because it is where it is every time I go to the toilet and wipe myslef I can feel the tumour, its like a constant reminder, and the pain is excruciating. I’m going to see my doctor tomorrow as it is getting more painful day by day and I don’t want to to go over my daily amount of painkillers as I dont want to become resistant to them. I’m finding it hard mentally as no-one gets ‘your’ cancer as they haven’t got it and I don’t know anyone else who has cancer. I knownpeople tell you to be strong and fight it, thats what I’ve been doing, but its hard keeping that face on. My son came to see me this weekend and it was the hardest but the best day I’ve had for a while. I had to keep it together but I suffered afterwrds. 

Parents
  • Hi Sam

    i have felt and still do at times feel the same as you do. I was diagnosed with womb cancer on 13th April. Fortunately I do not have pain but I am still very aware of cancer inside me. All I want at the moment is it to be dealt with.  I have had a biopsy, then a three week wait for results. Then an MRI a week after for which I get results on Friday this week. Another wait. Hopefully I will find out op date on Friday. I need to know. At least you know when and that the doctors have a plan for you.  It is hard to cope with mentally but people on this site are very supportive. They have held me together through all the waiting.  It was hard to tell my family but the support of my husband, son, daughter and big sister has been invaluable.  And there are times when we can smile.  I went for my MRI. I was terrified because I am claustrophobic and find it hard to keep my old bones still. I thought I would’nt cope. I asked for ABBA to be played through the headphones. Well I sang along at the top of my voice from Mama Mia to I have a dream.  When I asked they said the machine made too much noise for them to hear me. I told them....do you know what I don’t care if you could hear. It got me through. Of course I couldn’t hear myself either so it probably wasn’t of concert standard, :-)). 

Reply
  • Hi Sam

    i have felt and still do at times feel the same as you do. I was diagnosed with womb cancer on 13th April. Fortunately I do not have pain but I am still very aware of cancer inside me. All I want at the moment is it to be dealt with.  I have had a biopsy, then a three week wait for results. Then an MRI a week after for which I get results on Friday this week. Another wait. Hopefully I will find out op date on Friday. I need to know. At least you know when and that the doctors have a plan for you.  It is hard to cope with mentally but people on this site are very supportive. They have held me together through all the waiting.  It was hard to tell my family but the support of my husband, son, daughter and big sister has been invaluable.  And there are times when we can smile.  I went for my MRI. I was terrified because I am claustrophobic and find it hard to keep my old bones still. I thought I would’nt cope. I asked for ABBA to be played through the headphones. Well I sang along at the top of my voice from Mama Mia to I have a dream.  When I asked they said the machine made too much noise for them to hear me. I told them....do you know what I don’t care if you could hear. It got me through. Of course I couldn’t hear myself either so it probably wasn’t of concert standard, :-)). 

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