Hysterectomy

Hi i dont really know where to start but basically ive had quite a rocky journey i went in for a smear test which was my 2nd it was overdue by 2 years due to being caught pregnant twice in that timeframe basically my result came back pretty quick and the letter shown i had severe dyskayosis and positive for hpv so was refered to colp anyways a few weeks past by and off to colp i went where i was explained my results and told the strains of the hpv were 16 18 and other positivity the colp was performed but nothing was seen so no treatment was given but 4 biopsies were taken which came back cin 1 2 and 3 with 1 biopsie showing stromal invasion i was bought back in for a lletz procedure yet still nothing could be seen except for cervical erosion 5 weeks went by and i got a phone call it took so long as they had to take my results to a meeting the lletz had shown a larger area of stromal invasion but was not completly removed so at this point all ino is this and i need to go back for another lletz procedure anyway i went back yesterday to be sat down and told as tho i was already aware that not only was the stromal invasion found on the surface it was also found in the glandular cells along with high risk cgin came as a conplete shock to me to basically be told i have early stages of 2types of cervical cancer i went on to ask questions and 1st one i asked was what if it comes back this time her instant reply was hysterectomy i instantly cried im 27 and she sat there and told me asthough it was nothing how am i supposed to get my head around this possibility even if its just the pre cells that remain i face this dreaded op as ive no more cervix left to remove not only that she goes on to tell me as ive had multiple lletz treatments the little cervix i have left may react and close tightly stopping period blood and dischare from getting through which could also lead to hysterectomy now im left anxiously waiting with no support is there any1 out there i can possibly talk to or even has a similar experience to share im struggling to get my head around it i dont understand why i havnt been staged or offered any other kind of treatment 

  • Hi Lismich.

    Sometimes doctors forget that they're dealing with real people. For self-protection, they have to treat people as "cases" (otherwise they simply couldn't cope), but that means that they can be too blunt at times.

    I can appreciate that the prospect of having a hysterectomy at 27 is completely shocking and we're all hoping that this won't happen - but if it does then I'd like to share my wife's story.

    Some 30 years ago, when she was in her mid 30s, my wife's gyne problems became very severe. She was having very heavy periods with massive bleeding, and this was happening every two weeks. She was getting little respite at all, and eventually she asked her consultant whether a hysterectomy was the way forward.  The consultant agreed, and a few months later she had the surgery.  It completely changed her life, for the better!  In fact, it gave her back her life. She no longer had any periods, she had more energy, she was no longer tied to wearing pads, and let's say that our sex lives improved dramatically and of course we no longer needed to take precautions ;)

    So, if this should happen to you, please don't think it will be the end of the world, because it needn't. There is life after hysterectomy. 

  • Hi I'm going through something very similar!

    Im 24 years old and I was recently dignoised with womb cancer which is spreading to the muscle, of course they recommend a hysterectomy which I really want to avoid because I don't have kids which I really want but having difficulty over the past few years due to PCOS. I know it's so hard to get your head round it but right now it is what it is. You have two kids and that's a blessing in your situation, honestly just think positive that they caught it and get what ever treatment to become better and watch your kids grow up because that truly matters. Good luck x