New to melanoma and group

Had a mole removed two weeks ago. Called on phone to see me Monday 10am! Dermatologist Told me it’s a 3a (2.6mm) melanoma that will need a wide local excision then I was left to sit in the waiting room for 2hrs to see plastic surgeon!  Awaiting another call now to go in for operation which will need a skin flap as on shoulder blade and sentinel lymph node biopsy. The Macmillan nurse  Explained about the radioactive tracer &blue dye before the op to see which lymph node it tracks to but I’m feeling very numb.  What if it’s in the lymph nodes? Does this mean it’s spread? Said I would have to wait 6wks for results! I was numb yesterday. Didn’t sleep a wink last night - on a rollercoaster. Will I die? Is it that bad? Will that be the end of it? So many silly questions that I cannot find the answers to :(    Anyone else gone through this already? 

Thanks

 

  • Hi Dizzidancer.

    Sorry to hear about your diagnosis and yes it is incredibly unfair. I guess I wanted to post here because I'm still here 6 years post melanoma and so I'm living proof that you can beat this! In fact it gave me a real perspective on life and has made me realise some of my greatest ambitions. Weird I know but I hope you'll feel the same one day too.

    I know how awful it is waiting for operations and results. What I will say is that I was told that I'd have to wait 6 weeks post WLE to find out if it had spread but in the end it was more like 2-3 weeks. I couldn't wait the full time and called my skin cancer nurse who then called the hospital and I got my results that way. I assume that you have a specialist nurse who you can talk to? Mine was a real lifeline and the easiest person to talk to about my worries. I felt that I didn't want to burden my family either so if you ever want to talk/unburden here then feel free :).

    Have you made a decision about being signed off? I hope you're feeling slightly less stressed and have veen able to sleep.

  • GP has signed me off so at least that stress is gone and now I can ‘Maybe’ Get my head together.  I just can’t shift this bad feeling I have this time :(

     

    thanks for being there and listening I do appreciate it.  It’s good to be able to ramble on to others who are sadly here with me

    xx

  • Hi

    Sorry  to hear about what you are going through. I’m a retired primary school teacher diagnosed with endometrial cancer on Friday 13th, yes Friday 13 th of April. I had my MRI on 19th April and will go tomorrow to find out results and plan. I waited three weeks for my biopsy results so we are now into week 5. I’m tearing my hair out one minute and calm the next. Strangely I wish I was back at work because I know then I wouldn’t have time to dwell on things. The waiting is awful for everyone but the way we deal with it is so different. I too didn’t want to worry my family but I knew they would be more cross if I didn’t allow them to support me even though I know they’re scared too.

    So rant away. There are always people on here who will listen and know what you are going through. They have been a great support to me all through this.

    Come on, we are teachers. Stress is our daily bread and butter. We can do this. If you can teach a class of thirty children and survive then you can do this. That’s what I tell myself. But when that is not entirely successful then I talk to people here.

    Stay strong.

  • Just thought I'd call in again because my granddaughter has just come in with slapcheek confirmed. It made me think of you.

    I may go for surgery in a couple of weeks and we seem to be on a similar timescale so far so I'll keep comparing notes if we can ramble along.

    David

     

  • Oh blimey David!!  Apparently though it’s contagious before they get the blooming rash so you don’t even know they’ve got until the rash appears.

    apparently spread by coughing & sneezing so working in a school it just kept going round & round.

    we have 28 in our class & there were 10 cases before the Easter holidays and another 3 confirmed since we came back! 

  • Yes I’ve got a Macmillan skin cancer specialist nurse & I know it sounds silly, but I feel like I don’t want to ‘bother’ her with silly questions.  I know it’s what they’re there for but it’s just me.

    im glad to get a positive grip on things too

    thanks 

  • Another teachers perspective! Thanks it’s good to know you’re here but not, if you understand?  I just cannot deal with the stress at the moment and need time to get my head together

    Thanks 

  • As I said we all deal in different ways.  Good if you can get your head together in the quiet of home. Even though I’m a strong person, I’ve had a difficult six months with hubby Ill and brother passing away. This was just a final depth and I couldn’t cope. Whilst waiting for biopsy results I really flipped. Saw my GP and he oersuaded me to take some low dosage anti depressants. Reluctantly I kept to the minimum one a day but they got me through. I saw him again after the results and he again suggested some more long term ones. I took one then decided it wasn’t for me so I didnt take any more. I’ve had some  dark moments but I’ve got through them with the help of others here.

    i got my op date today. 17 May.. another wait but I feel more positive now I have a timeline. 

    I sent you a friend request so if you want to say something not on the  open forum then accept it and I can send a private message to you..  no problems if you don’t want to take it up. I’ve had a few friends like this who have really helped me through those dark moments when all I wanted to do was  rant...but not on the open forum.

  • Thanks I’m not sure how to find the friend request x

  • Hi Dizzidancer,

    I saw you were having a bit of trouble finding the friend request Sundial has sent you so I just wanted to share some information from our help using the forum section which explains how to find and accept a friend request.

    I hope this helps :)

    Kind regards, 

    Steph, Cancer Chat Moderator