Hi Andrew (if you are still following this thread - it's pretty old now).  My wife has just started chemo for a late discovered and unsuspected eosophageal cancer.  It hasn't spread to any organs but is affecting some lymph nodes and we are told, because of that, it's inoperable and incurable.  That sounds terminal to us, and yet other posts here speak of longevity with cancers of a similar or more advanced nature - and that's encouraging.  It's hard not to "take charge" and try to fix the unfixable.  It's not fair on my wife, but I haven't yet got to the stage where I don't question everything, looking for a missed cure, and accept the specialists know what they are doing.  It's harder, much harder, on my wife. 

Hi,

To be honest I have not been on here for a very long time, I had RT over a year ago and then Chemo last September  I lost my taste and appertite so lost three and a half stone in weight, my taste and appertite is still not as it should be and I am very angry that my life has been ruined by RT I am not sure if there may have been a different way of dealing with the cancer on the back of my toung and behind my nose.

The RT got rid of 50% of the mass and the Chemo did not touch it at all it is Plasmacytoma, anyway I have had a break from treatment since Xmas eve so I am getting a little stronger but still struggle to eat and taste I swear I have put on at least ten years and I hate it, hate not being the person I was ,people use to comment on my butt now they say where is your butt,at least I am still here,I must admit I did not think I was going to be with the way I was feeling, the consultant said he was going to give me a bone cell transplant but that seems to be off the books now, I guess what will be will be but I do wonder if the consultants do always know what is best, I have another PET scan early May to see where we go from there to see if the cancer has got better or worse.

Moving on to my wife who has lung cancer that my post was first about, I am pleased to say that she is on targeted treatment and it seems to be working well she has nose bleeds and her fingers became very sore but cutting a long story short she is well enough that she has returned to work, so I guess what I am saying you have to go with what the doctors are saying and sometimes it works out and other times you have to try other things ,my wife eats well and does excercise every day unlike me so again maybe it is also down to how much we put in to help ourselves

There is a bit of an update and hope that it helps some of you cope better with what you are going though.

best wishes Andrew.