Hi Ian.

We have been mentioning yourself and Hazels blogs today to a new poster. Its a great thing you both did!

I am keeping fingers crossed but not hopeful for no RT.

It is a nightmare journey to the cancer treatment centre via Glasgow traffic. Not sure if Edinburgh would be any better,probably not.

Also have doubts that I could drive there and back during treatment.Patient transport is an all day thing too,not ideal.

I swore I would never put a foot back in there after hubby left there. Its my worst nightmare,mask is too.

I thought about moving back to my house in Argyll but its not much closer and weather dependant ferry involved too.

Ok moan over :-) Speak soon. Are you keeping well? xx

Hi London 1

This is Hazel aka radioactiveraz I am 7 months post radiotherapy for tight tonsil cancer plus lymph node I have s blog where I go through week by week my trestmrntvetc.

Its not easy but no point telling u it is but it is doable. Ian on here Anchor as already replied to you. Words if advice take someone with u to all meeting s to take notes coz your brain won’t take it all in   Hold head up high walk talk u can do it.  Send me a friend request if you want to chat or ask away on here

keep  us uk to date   Ps my typing is bad as I try too fast. Lol 

hazel 

Hinclars sending positive vibes for Friday u can do it my friend 

ha rl ps biked 55 km yesterday walked 12 km up hills today 

h x

Hi Clara,

I'm sorry to hear re transport logistics as it's a pain to travel like that every day for treatment.
As you know I was so lucky and was 10 mins drive from hospital, no traffic.
Is train an option? I used to stay in Edinburgh and know traffic is a nightmare pretty much all time but early morniing/tea time is soul destroying. Same with Glasgow,

I hope at least public transport gives you are more viable option

I'm pretty much same old really and seeing specialist nurse & team on Thurs as I'm still really stuggling with sleep (too much) and appetite (not enough)

Will maybe update my thread around first week April as a month on update...Also glad both of our blogs help people

Hope you get good news re treatment plan and that anything you do get, can be mimimised in the way of travel.

Please keep in touch and let me know of progress.

kind regards
Ian

Hi Hazel

I keep saying it! Flamin wonder woman :-) How do you do it?

My wee daughter said to me last night, Mum you are doing so well that cheered me up. I am like a woman possesed by food Lol.Some foods still off limits but Im game to try whatever.

Speak soon xx

I had my tonsil biopsy yesterday, and was told I have options with high success rate.

option 1 chemotherapy and radiotherapy outside of London

option 2 robot and radiotherapy in London

 consultant was really positive and was trying to push for my results over the weekend so that we can have meeting this Monday with The Team if not will be following Monday.looking for advise on which option to take swaying more towards robot as I wouldn’t have to travel each day ,would stay at the hospital in London for 1 week then shorter radiotherapy.But until meeting nothing confirmed for definite just what consultant thinks will happen.

Hiya...I’m so sorry to hear about your brother and wish him all the best..

my hubby was diagnosed with stage 4 throat cancer in jan 2018 it was in the epiglottis and which spread to the lymph nodes.. he had the Trans oral robotic surgery on he’s throat and they had to remove the tonsils and then he also had the chemo and 6 weeks of radiotherapy..it was all very brutal and a huge fight for us all but in September 2018 he got the all clear and is has been back st work full time since nov 2018..all his taste buds are back to normal and eats everything just like he did before..I call him my walking miracle 

I’m hear if you’ve any questions 

best wishes

Tina

Hi Tina, that’s really encouraging to hear, I guess I’ll find out what stage I am at the meeting.Was your husband given choice? I was told most of the lymph nodes on that side would be removed.Silly question but are the nodes removed through the mouth or do they go through the side of the neck ?

i have a lot to ask 

Hiya....He had a huge lymph node on the left side of his neck 85mm with a mass growing on top but the chemo shrunk the lump and it completely went..it was a huge relief for us all 

Tina