I've just joined this site and reading through I find these tips very helpful.  I've had my surgery recently and will be having radiotherapy in a couple of weeks. i do feel really tired already and wondered if the radiotherapy made it much worse.  Thanks for all the info.

I found radiotherapy very tiring but not every one does. Equally, I had no skin problems and some people get a lot. It seems to affect people in different ways. 

Hi. I was diagnosed with same 6 years ago. Tubular same size no lymph involved. 

Had it removed, three weeks radio therapy and 5 years of letrozole. 

Big thing is life style change and the research is strong for link between alcohol and breast cancer. I'm still working on that. 

I was told that there was a 2% chance of return. I read that as a 98% chance it wouldn't .

I've been fine and hopefully will continue to be so. 

Xx

Hi. Thanks for repy. I have lumpectomy 17th December. Trying hard to stay positive. I like my wine too.xx

I had a double masectomy 2 weeks ago. I had 2 tumours in one breast that were both tubular and DCIS in the other.

My oncoplastic surgeon said right from the start that if you have to have a breast cancer, invasive tubular is the one you want. It rarely spreads from the breast.

I hope that makes you feel a little more positive. Good luck, stay strong and remember you have every reason to feel optomistic.xxx

If possible I would like to chat more with you. I have sent a friend request.xx

Hi Lindaanne

i absolutely love your reasoning 98% it won't recur.! This  has helped me today. I am recuperating from my surgery and get path results next weds. Well said! 

C x

Have pmd you xx

I had 2 tumours removed from one breast both tubular cancer 6mm and 16mm.  2 or 3 Lymph nodes removed and were clear.   It was very reassuring to know it's slow growing and prognosis is good.  Both removed through one entry point which the surgeon stitched and covered with glue gel stuff.  It kinda pealed off with a bit of help (and olive oil) after two weeks.  The scar has healed beautifully and is smooth.  Looked all crinkly to start.

  Next I tried one tamoxifen tablet which I was told to take for 5 years.  I had a headache for 2 days, I was one day into what are normally heavy periods and the bleeding stopped completely even though I didnt take another tablet on day 2.  I've felt bloated for few weeks now.  I'm chunky legged so dvt does worry me.

So I went online and read about PREDICT it's on the nhs website.  You put in your info and tells you how beneficial tamoxifen is for you.  It only improved my chances by one percent but risks are dvt and cancer sooo.... spoke to two gps. One said take it one said nah.  Spoke to breast cancer online support and breast care nurse after which I decided not to take it.  I'm 44 and dont want all those side effects. 

So next thing is radiotherapy.   Today I met the oncologist.  Wonderful helpful lady.  She answered all my questions, I thought she would laugh at some of my questions but she took me seriously.  She let me see the MRI because I have cysts and wanted to see how these differ on the MRI to the cancer.  This was reasuring because one cyst is protruding at the moment and a bit painful but I could see it was clear and dark but the cancer looked completely different white and dense.  She explained the radiation will pass through part of my lung.  I'm not very happy at the thought of that.  One tumour the bigger one only had 0.2 of a mm clearance around it on one side.  The side nearest my chest.  She said normally there needs to be 1mm for it to be totally clear and usually a second op is needed.  So me being me I've asked to see the slide pictures showing the slices of cancer under the microscope.   I want to judge for myself how clean the boundary looks and how big the margin.  I know they removed the markers so if they need to go back in to remove a bit more they might not find the place? 

I'm thinking two lines of thought.  Do I have the bigger site hit with radiotherapy and leave out the smaller site to avoid radiation to the lung... she says I will need 10 days of radio due to the close margin on the big tumour.

Or do I leave off the radiation altogether pray and eat cancer fighting foods, cut out alcohol and sugar from my diet (which I will do anyway) 

If a tumour regrows we will find it in the mammograms and remove again.  The op was absolutely fine and so was recovery.  I just dont want to risk a lung as I'm still young.  

Does anyone have experience or stories of it returning and being removed a second time?  I feel that wouldn't be so bad as it's slow growing and very very rarely matasticises?  I hoped my thinking makes sense ; )