Hi crimbo 

I know wat u mean and kept thinking of backing out as feel like I’m going from being ok to torturing myself or letting them hopefully it won’t be as bad as I’m imaging and same for you but they said I need it done arghh 

Mine is the 29/ 01/

keep saying Monday coming lost with dates but realise it’s the following Monday 

being off work confuses my days ha not sure but think high dose six weeks  Monday or Friday and like u have to travel to another town not as far as yours which is a trek for u hope u have help and not doing all driving urself as I’m hoping same as they say about tired and fatigue 

keep updating thinking of you and hope all goes well as it can good luck 

thank you 

pauline 

Pauline

Welcome to the forum

I am now 3.5 years post treatment for throat cancer and had 30 sessions of tomotherapy (high dose specifically targeted radio therapy) and 6 8 hurs session of Chemo.

although not the same cancer as yours or crimbo the treat offered i guess is vertually the same and therfore has the same impact.

As your medical might have alrady stressed, its not an easy treatment to go through, but go through it we do and come out the other end

I have enclosed my blog ... it might be of assitance for you and might not if you are not having the same sort of treatment.

gammaraygary.wordpress.com/.../

The effects of this treatment really start to kick in halfway through week two and it progresses from there. Get used to the tiredness .... unfortuantely or fortuanetly for me that one stayed around and i sleep like a baby for 8 hours even now.

Lets us all now how you are getting on and ask anything at anytime ... we are here to help

Vatch

Hi there 

vatch 

Thankyou 

always good to hear from others not sure wat that treatment is u had 

but know they using target radiotherapy 

already had mask made and c t scan 

and I will look at ur blog ty 

I think must be same sort of treatment they said doing all the neck area side effects sound awful 

and I feel like running away from it all that’s before it starts but have it face this and see wat happens 

I’m only used it six hours if lucky sleep so maybe I sleep more wen it starts 

and praying no Major problems 

my gp said if all gets to much u can stop and say enough 

so I guess that’s something 

thank you again with all the support on here and knowing anytime can ask is great hank you again 

pauline 

Do any of you guys know the standard error margin for neck radiotherapy?

I saw my plan yesterday and it’s the whole of my superglottis, with a 2cm margin, all of which I knew but the have added a 0.5cm error margin, increasing the healthy tissue inside the field considerably!

Not happy again now, they’ve only ever mentioned the 2cm margin previously and I’m feeling duped!!

Hi crimbosocks 

I’m not sure my first is 29th but was told whole of my neck area which has worried me and feel duped to as thought only middle part well were they did op I guess won’t know about the margin part until they give me if they give me on 29h 

i feel confused by all of this and like don’t have choice 

Crimbo

sorry to hear that your plan has not gone the way you had hoped

are you having imrt or do you have any other radiotherapy options.

vatch

Hi . 

I just want to say what u r feeling is pretty normal I too am 49 n have just done my  6radiotherapy n past week 1 of finishing . Everybody is totally different n to be fair u have to stay positive thinking . The treatment itself is not painful n th nurses n everyone r so kind n r there for u all the way u will have loads of support n will meet with them every week .i  have had no tubes or anything I have had abit of swallowing food a problem but all is bearable as u will be given good pain relief to help you n u do need to rest when your body tells u ! I hope this has helped u a little bit it is scared stuff but u will be fine  

Hi

i have had tonsil cancer was given the all clear last Monday I had 70gr of radiotherspy over  7 weeks with 2 chemotherapy.they don’t give  radiotherapy  lightly so take oncologist advises.

i have written a blog Www.radioactiveraz. Wordpress.com

iys more or less a weekly update going from the mask u to recovery including feedingbtube. It’s nothing to worry about in the long term I had ut for 45 days and look at ut as utbsaves my life in the scheme Of things. I am a female 61 if  I can do it anyone can, ok  it not everyone’s is  the same .

anybquwstions just post on forum 

hazel

I had vocal cord cancer, right cord stage 1. I was diagnosed this time last year and have had 2 day surgeries under general anaesthetic, lasered, and 4 weeks RT with a total of 55 gys. This finished on 23rd April. I have been back for 2 monthly checks and am now clear. I too dreaded RT but appreciated that it was necessary to wipe out anything remaining from the surgery. I was very lucky... sailed through with barely a sore throat and slight pain swallowing... I put weight on !! Worst part for me was a continual nasty cough which started the week treatment ended and lasted for 2 weeks... constant 24 hrs, little sleep... nasty. HOWEVER... just 9 months down the line I am cancer free and doctors are very pleased... checks now every 4 months. My voice has taken a bashing and is rougher than before and will almost go if I’m talking over a longish period and I’m constantly clearing my throat of excess mucous. It’s still very early and I’ve been told that both these will improve over time. Both are mere nuisances when the cancer has been banished. So, try not to worry. If your medical staff are half as brilliant as mine have been, you will be wondering in a years time what all the fuss was about. I am just so grateful that I trusted my doctors and let them do their miracles. Bless the NHS and may you travel the same route.... best wishes.