Hi Maria good luck withntonsil op tomorrow let us know how you get on when you feel up to it. Deep breath you will get through this 

don’t forget the painkillers use them if yiu need to 

hazel x

Hi Hazel , I’m overwhelmed how lovely all you people are , thank you so much , I’ve stocked up on tablets so might me high as a kite next few days haha , thank you again and I truly appreciate how lovely you have been , I’m gonna kick it’s ar*e if it is what I think so I’m not done yet , thanks again for all your kindness will update when I’m home thanks again and you take care

Maria xx

Hi Nicola

sent you reply in private message so hope worked.

Re your question re sore throat and scan - Throat was still tender i would say but not really sore. I've never really been in much pain throughout as Ive had a wonderful support team and Ive always had medication strictly controlled and upped when required. Both Hazel from here and myself are big advocates of utilising painkillers when needed.
My neck is still a little swollen and Im being referred to get some specialist help with neck exercise.
I woundnt worry too much to be honest around expectations of healing quickly as this treatment is quite different and pretty intensive so our bodys take some time to recover from it all. Some quicker than others and I have been told a few times by my consultant and my medical support team that it can take between 6 months to 18 months to fully recover from. Thats not to say thats how long it will take you nor is ir normal to take that long usually, but again I was warned at the start the potential for a long recovery process. I had appointment with consultant last week and as Ive still got fatigue issues he just stated again, not concerned and as far as he is concerned all normal and they consider it early days.
this is very easy advice with hindsight, but I've tried to stay quite positive throughout and tried not to over analyse everthing and just went with the flow and advice from team and the re assurance that all the side effects and slow recovery is ok and normal.
Hope that makes sense, but you can have a look at private message and get back to me with anything you feel I can help with

kind regards

ian
 

Hi Maria we are all in it together when you have your m d t meeting let me know and will send you list of questions to ask as your brain can’t take it in somtake someone’s with u tonweiteb things down 

We are a small bunch as relatively speaking tonsil cancer is rare even rarer for us females 97% male 3 % female my hospital oncologist s were fighting over me !!!!LOL hence why I got the top man !!!

we are proof that’s light at  end if the tunnel exists 

keep that tbought

hazsl x

Hi Hazel that’s made me laugh , always new is have someone fight over me one day lol , joking aside I know I keep saying it but I really do appreciate your kindness , and that’s great thank you my mind has already turned to mush so any help will be great 

Maria xxxx

Hi Maria how are you feeling ? 

Ive updated my blog today if yiu need some inspiration.

keep in touch when you feel able to 

Hazel x

Hi Hazel sorry not replied ended up in cardiac unit on Tuesday and an still there , also got problems with bowel now , not a great start really , thank you for asking 

xxxxx

I had robotic surgery to remove a stage 3 tumor in July, 2017 and finished up 7 weeks of radiation to the area on October 6, 2017. I only had one bump when I had an ulcer in January of 2018 surface. My energy has been good, my weight has come back and I generally have felt good since the ulcer healed in February 2018. My taste buds still come and go but mostly are good. Some foods have zero taste and others may be bitter tasting at times, not always. My neck feels sunburned still. I had an MRI every quarter in year 1 and will do one at 6 month intervals in year 2. All clear. This is gone and I rarely think of it. It was an outside variable - a virus - that caused it and I am not worreid about reoccurence. 

Here in the states there is a product called Mugard that coats the throat and lessens the effects of radiation. I took it and don't know if it was directly responsible but I did not get any ulcers during radiation. Only after when I stopped using it. I gargled with it twice a day.