Feeling Rubbish!!!

Hi, as you can see, I am very new to this, just joined today, I just want to know..... every time I have Chemo, am I going to feel this rubbish for days after? I have barely moved since last Tuesday.... my mind wants to do things, but my body just won't allow it? X x x x x x x x x 

 

  • Just want to say hi .. and welcome ... I've not had cemo but lots on here have, and I'm sure you'll get lots of support .... I have arthritis too as well as this cancer (brest) and I have to listen to my body and rest when it tells me ... without knowing and I may be wrong , but maybe your body needs time to get used to it ... make the most of the time to listen to it , and hopefully it will improve... but hopefully your get first hand advice from others ... 

    you diddnt say age or normal health as that could make a difference ... thinking of you ... big hug Chrisie xx

  • Hi Chrisie, thank you for your advice... I am just 50, (consider myself a young 50!!!) I am of very normal health, few pounds overweight etc... certainly no health freak, but like to enjoy life. Just found out I too have breast cancer... I am listening to my body but also feel ashamed as others seem to be doing a lot better than me? Am I not pushing myself enough? Am I just being lazy? Am I not thinking positively? Etc etc... Are you going to be having chemo Chrisie? Thank you for your time and taking the time to respond to me.... it's lovely to know others are there that have comforting words and advice. X x x x x x x x x x x
  • Hi there ...all I can say is please don't compare your self to others ... like when we have children ,never compare them to others as ones good at speaking another one good at drawing etc ... like our bodies, I see some in their 90s running a marathon, I find it hard walking down the street ... if that makes sense ....  

    and no , I'm not having cemo , even though I had a grade 3 her 2 ... as my bones are pretty weak ... with ostio ... stenosis ... trapped nurves etc ... but luckily my lymph node was clear ... saying that I'm doing fine at mo ... and enjoying every day .. be it long or short ... ..

    so maybe good to ask your nursing team who know you and your cemo treatment .. they will tell you if it's normal .... but be kind to your self .. as its early days ... hope you get a reply from us on here who have had cemo ... wer always here ... sharing your journey with you ... Chrisie Xx

     

  • Hello Pink Elf and welcome to the forum.  I'm so sorry you are feeling so bad, I can totally empathise because I have had three rounds of 6 chemos over the years and have always felt like death warmed up for several days after each session.  Sorry to be the bearer of bad news, darling, but best to be honest.  It does ease off eventually but by then it's time for the next one - just tell yourself that it is killing off those bl - - dy cancer cells, it might be making you feel bad but it sure as hell is making them feel worse!  

    Thinking of you and sending a big hug, Hazel xx

    PS In case I've scared anyone else about chemo, please remember that not everyone reacts the same way - poor PinkElf and I are just made that way!   I have met many people who sail through the treatment with no problems - and I tell them all I hate them :-)

    H xx   

     

  • Hello Hazel, sorry I didnt reply sooner, I ended up in hospital as I had a dangerously high temperature so they wouldn’t let me out until my blood count and immune system were right back up there! 

    So I just wanted to say thank you for your honesty.... it’s a horrible thing to say.. but I am glad other people feel the way I do, at least then I know it’s normal!

    so I have 3 sessions of this really harsh chemo, then 9 sessions over 9 weeks of a less harsh chemo, (everyone else knows all the names of everything... I don’t and don’t really want to!!!! :0)...... so hopefully the less harsh one won’t wipe me out as much... fingers crossed!!! 

    If you don’t mind me asking Hazel... do you have / had breast cancer? .. do you have lots of family helping you through?

    much love to you Hazel, and thanks again! Xxxxxxxxxx

  • Hi there pink ... sorry to hear you had to have a hosp stay .. but glad your on the up and your home now ... just wanted to say hope your next lot of cemo doesn’t make you feel so bad, bless ya ... just a thought but when you find yourself really tired, and having to rest maybe you could go on here, as there’s others going through their journey and you could help them too ... and it makes the time go a bit quicker too ...it sure has helped me ... 

    this cancer try’s to take so much away from us, that no matter what it does hold on to the old you, and don’t let it get you so low that everything looks bad .. do what you have too to kick its *** .... your braver then you think ... 

    let us know how you go ... always here if needed .... big hug Chrisie ️ x

  • Oh, poor you - infection was always my worry, I can't tell you the number of people with colds and coughs I tried to avoid on the bus to and from hospital!  Luckily I never caught anything, though. 

    Sounds as though you are having a different chemo regime to me, mine have all been every three weeks, so at least I had a little bit of respite from the nasties in between.  I don't know the names of my drugs either off the top of my head, but I do have them all written down in the notes, except for the breast ca one, which I don't think I was ever given any gen about.  Yes, I did have breast cancer about 20 years ago, for which I had 6 chemos and 5 weeks of daily radiotherapy, and the info we were given then was nowhere near as comprehensive as today.  My current nemesis is ovarian, for which I've had 2 ops and two lots of 6 chemos over the last few years, final chemo was in March 2016 - now in remission, fingers crossed!  I am still having 4-monthly check ups at the moment, next one is on Monday. I  don't have much family and live alone since my partner passed away 3 years ago, but his brother and partner are always there for me if I need them and phone regularly, which is all I need really.  I am quite good at coping with all the hospital stuff on my own, it doesn't worry me as I was an auxiliary nurse before I retired so am well used to hospitals.  Also my lovely friends on here help a lot!  

    I'll be thinking of you, sending a big hug.

    Hazel xxx