Diary/Journal

Is anyone else keeping a diary or journal of their journey from diagnosis, treatment abd recovery?

I decided to start one after being diagnosed with breast cancer on Monday this week. I have only done my day of diagnosis day so far!

 

Thought it might be nice to look back on at some point! 

 

  • Yeh I have started one too like you thought be a good idea to write down how I am feeling and what I am going through I have been diagnosed with endometrium cancer which is womb cancer 

  • Are you having treatment yet, what stage are you at? 

     

  • Hi Reebok

    I kept a diary when my treatment started it was very useful. Helped me to see patterns emerging as to how I was feeling. Also when I saw the doctor I could tell them how I had been and in my case showed a bad reaction to the antihistamine and steroids they gave me for side effects so they could change the dose and how it was administered.

    I also had a page for questions so I could put them down when I thought of any.

    river

  • I was diagnosed on Wednesday with breast cancer and thinking of keeping a log! Although this may be easier once I get past the devastation I currently feel. I'm sure this will pass, well I hope so!

    how are you generally feeling? X

  • I'm with you completely, its been 2 weeks since my diagnosis, had 2 scans so far and got 2 more to come. I was going to have chemo before surgery but now they decided to do surgery first. I've been quite positive as I was told it has been caught early but last night I hit the lowest I have been, tears and very emotional. Felt wiped out today and had to have a sleep this afternoon. I'm trying so hard to remain positive but all these tests and scans just raise my anxieties at thinking they are going to find it somewhere else. I go back to consultant on 3rd July to discuss surgery and get results from scans and I'm petrified. It's the shock you are feeling, what stage is yours at and how are you feeling?
  • Hi everyone

    i also have kept a little diary of notes of medications and feelings.i to have only been diagnosed afew weeks ago breast had spread to liver and spine so that's what I got told them was told they was unsure of primary.been ill in bed for 2 weeks with back pain unsure if it to do with cancer or muscles 

    got my first appointment on Tuesday don't know how I'm going get there had afew really bad days so wrote all that down.

    I learnt on this site that all feelings are normal and that there are many people here to support us 

    hugs 

  • Hi reebok I am in a state everything has been like a whirlwind I got diagnosed and then emotions net all over place got ct scan and they then said surgery required straight away which I thought well moving quick that's good I went in last Wednesday for supposed to be key hole surgery to have a hysterectomy however everything went wrong keyhole did not work as when surg on looked inside it was too bad so he decided to open me but then said he needed to get other surgeons so 5 other surgeons helped my ovary and tube were stuck to my upper bowel so he had to cut them away from it and doing so they cut bowel so it started leaking into my abdomen so had to repair that then all my other organs were stuck to scarred tissue and muscle so they had to cut all my organs free so have had hysterectomy-ovariectomy salpingo-oophorectomy washings and scrapings and a bowel repair woke up in intensive care just home and now consultant worried about results its all been sent to pathology but said he did not expect what he seen inside so am so stressed as I thought once got surgery it would then be radium and chemotherapy as a precaution but now I don't know and I am in agony got keyhole cuts and two huge cuts with lots of staples and an emotion wreck but how's hing with you we can all support each other through all this and am just trying to keep head above water xxxxxx would love to hear your update and hope a have not bee too doom and gloom xxxxx

  • I'm really sorry to hear what you've been through, it sounds horrendeous and not surprised your emotions are all over the place, hope you get some relief very soon, no one deserves to be pain and discomfort like that. Speak to someone and get help, don't suffer in silence love.  

    I'm not too bad, I'm on tenderhooks tonight as tomorrow I go back and see consultant after having lots of scans, MRI, CT and bone scan. I should get some results and plan of action going forward.  I am so worried, although when he initially gave me the diagnosis he said it appeared to be Primary and hadn't spread I fear one of these scans may have picked up something else somewhere else.  I guess its only natural to be so worried but it feels such a weight hanging over me, tomorrow can't come soon enough.  Keeping everything crossed. Keep you posted. 

    I hope you feel better very soon, let me know how you are? 

     

    xxx

  • Hi I had counselling when I found a lump ( although I was told it was benign at first it turned out to be cancer ) .......the counsellor suggested a kept a diary and photos of my scar etc as I was so worried about my scar - well she I thought it was benign . Funnily enough know it's cancer the scar is the least of my worries.the diary is a fantastic idea - I did mine as a private blog but invited my husband to be able to read it ... this has helped loads as sometimes if I have to actually speak the words I am feeling I ended up a blubbering wreck .....if I write it in the blog he can read it and knows without me becoming a blubbering wreck too often. Seriously start one write now. Good luck with your treatment 

  • Aw keeping everything crossed for you xxx I got help spoke to ward and discovered wounds are infected that's why in so much pain sorry if I was sounding off in earlier post and yeh it's understandable for us all to be going through emotion trauma good luck keep me updated xxxxx