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Feeling numb

Rach13
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I had my first big seizure in march this year and since then ive been having what i call jitters in my right leg, they were treating me for epilepsy until i had an mri scan in april (26th)which showed i had a small tumour on the left side of my brain (suspected low grade glioma of the  left SMA) im awaiting appointments for 2 mri scans to determine what grade etc.. my family think im in complete denial about the whole situation because im not upset about whats going on but i have 3 children at home who need me to be strong.. how am i supposed to feel? Crazy crazy question i know xx

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    Hi Rach Your not supposed to feel any way you feel how you feel. We all react differently. I didn't believe it at first in fact the McMillan nurse showed me the results. I carried on for a while probably in shock may well have been in denial but then I had a complete meltdown, tears -whole "I dont want to die" my Husband broke down as well. After that we got on with things my treatment started and I had ups and downs. Its your cancer and you deal with how ever you need to. If you are strong and not upset then that's your way of coping. Its not easy for family and friends because they don't know how to react either but they need to take the lead from you. Talk to them but explain its your emotions that take the lead here you need them to be strong for you.
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    Hi Rach, I vlove moletely ynderstand your stance and mindset on this. I have recentl discovered I also have a glioma in my brain 4x3.8cm in size, I like you am also waiting for results of MRI and to see the consultant. I have had my ups and downs over the last week but I am so much happier when I am in the positive space and taking a proactive approach. I guess one size doesn't it all in this and we are all individuals who respond and react differently to the news. Best of luck, I'll be thinking of you.
  • Offline in reply to Biggles1981

    Hi biggles, sorry to hear your also going through this, and hopefully we can share our journeys and advice..

    I dont know the size of mine i didnt even ask as were going on holiday on the 19th and all i wanted to know was wether i could still go i have a functional mri on tuesday and my second one is the day after we get back from holiday.

    Have they said anything about possible treatments for you? 

    My neurosurgeon has said that she thinks its benign and its small which is positive unfortunitely its just in the wrong place, but until i have these other 2 mri's we dont know what is going to happen, and thats just the worst!  All the waiting is frustrating, but we have all got to stay positive..

    Please let me know how you get on with your results, will be thinking of you too

  • Offline in reply to river56

    Thankyou for replying river,

    Ive been snappy at times but ive yet to have a breakdown (but i think its coming) its all the waiting, its been driving me crazy, but im going on holiday next week and i intend to enjoy every single second were away, 

    My family have been amazing and so has my ex partner, hes been a rock for me, not treated me any differently since we found out and i really need that, 

    I hope your doing ok:)

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