So last Wednesday 31/05/17 I went in for elective surgery to remove 12 fibroids, I knew this was major or surgery. The biggest risk was having to have a hysterectomy at 36. The surgery went well until a few hours after being in recovery where I had an episode with clinic-tonic tendencies, this lasted around 90-120seconds.
i was seen by a neuro surgeon who tested me and was going to send me for a CT the next morning. On my way to the ward, I had another similar episode. Following this I had a head CR and shortly after was informed late into the evening on the 31/05 that I have a cancerous brain tumour.
the plan was that I would remain in hospital for a few days anyway due to my laparotomy, however I was placed on a neuro ward for the best care.
On the 1/06 I was visited by the doctor who had intially told me the night before that I had cancer, he was making sure I had taken it in.
since then I had an MRI on Friday 2/06 and after 10 minutes of arguing I found I was still a Gaeyne patient or not seen on the 3rd by a neuro surgeon who told me my case would Be discussed at the MDT on 6/06 an for that I couldn't go home or wait in hospital. Needless to say with the shock, I decide do I wanted to be at home.
i am still waiting for anyone from the hospital to speak to me/signpost me to support or simply inform me what my diagnosis and prognosis is.
i have a 4x3.8cm growth in my front right side of my brain. Also got a call out the blue on the 6/06 to ask me to come back in for another MRI but no explaination as to why he.
i have been told I can't drive, lack all my independence and Ann basically feeling helpless and angry. Anyone have any advice on how quickly I should get seen?