Not coping with taking my letrozole medication after breast

omg where do I begin had a lumpectomy 13/12/16 results 2 weeks later back in 10/1/17 for second operation again 2 weeks later back for results back in 7/2/17 for mastectomy all this was fine  it was like a rollercoaster didn't have time to think about myself only how my family would cope etc then a month on I started taking letrozole and bang I have never felt so unwell is this normal? Has anyone else experienced awful side effects from this tablet?

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  • I have been taking letrozole since July my neck and shoulders ache really bad all the time what would happen if I stopped taking these pills.

  • Hi Pat, 

    I'm sure you'll hear from the other members in this discussion soon but I just wanted to suggest you speak to your doctor before doing anything as they are in the best position to answer this question and any others that may be playing on your mind at the moment.

    It can also be dangerous to stop any medication suddenly and without letting anyone know, so do book in to see them when you can if you're really struggling.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Definitely don't wait ask them if there are any other options - if you have a Macmillan nurse ask them they will support you - life is too short to be feeling pants all the time good luck snd remember to make sure they listen to you ! X 

  • Thank you so much for replying I'll make an appointment to discuss it with my doctor very much appreciated xx

  • You are very welcome 

     

    one thing I would say is that we are all different - I don't tend to read all the side effects I tend to go with the flow and see how it goes - what might not work for someone else could be fine for you x

  • Hi, I am suprised that you are on Letrozole as you are no where near the menopause, 

    im 70 and was put on Tamoxifen after having BC last year, I was then changed to Letrozole as I am post menopausal. Maybe worth mentioning to your doctor.

    I have similar symptoms as you and hate the thought of another four years on it, feel I've aged ten years.

  • Hey Lizzybee

     

    i was put into chemically induced menopause about 16 months ago because tomoxifen was no longer working for me .  I got on very well with letrozole for about a year, I was even able to continue with my running and horse riding then pot of nowhere I began to ache all over and got chronic fatigue - my Macmillan nurse and the oncologist were really good and gave me some other options. 

  • Hi , oh that makes sense , they do know what they are doing , that's good ! I think I need to ask for maybe an alternative one , as I was okay for a year and now, aches and pains , terrible night sweats . Hope all goes well for you x

  • Loads of love and luck x 

  • Thankyou , I wish you all the very best x

  • Hi just read your post . I am very worried I was told I have 2 cancers different ones in both boobs and need both taken off. The tablet they will give me for life will be latrozole. I have poli arthritis  that's all joints. My knees are relaxed and both hips. 17 and 16 years ago and need replacing again. My shoulders toes ankles wrists very bad. Is it worth going through this op on breasts I carnt walk without help have a scooter. I am 78 in sep and on my own since my hubby died in 2020. More pain and sleepless night I don't need.The exercises will be hard to do but not only that I have angina and 3 injections a day insulin. Could be better to leave thing alone and plod on. I hope you are managing to carry on ,people say you will Cope but I have had 7 years already coping. Thinking about you stay save xxx Florance25 big hug

  • The tablets are for the cancer not coming back so if you have a lot of pain now it won't notice I stopped taking my tablets for about a month now because I'm in so much pain but the pain is still there so it's got to be arthritis so I've am going to start taking them again  and start taking the painkillers and injections in my knees for the pain ..the pain in my fingers are terrible today  good luck on what you are going to do all the best in your fight 

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  • The tablets are for the cancer not coming back so if you have a lot of pain now it won't notice I stopped taking my tablets for about a month now because I'm in so much pain but the pain is still there so it's got to be arthritis so I've am going to start taking them again  and start taking the painkillers and injections in my knees for the pain ..the pain in my fingers are terrible today  good luck on what you are going to do all the best in your fight 

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