Not coping with taking my letrozole medication after breast

omg where do I begin had a lumpectomy 13/12/16 results 2 weeks later back in 10/1/17 for second operation again 2 weeks later back for results back in 7/2/17 for mastectomy all this was fine  it was like a rollercoaster didn't have time to think about myself only how my family would cope etc then a month on I started taking letrozole and bang I have never felt so unwell is this normal? Has anyone else experienced awful side effects from this tablet?

Parents
  • I have been taking letrozole since July my neck and shoulders ache really bad all the time what would happen if I stopped taking these pills.

  • Hi Pat, 

    I'm sure you'll hear from the other members in this discussion soon but I just wanted to suggest you speak to your doctor before doing anything as they are in the best position to answer this question and any others that may be playing on your mind at the moment.

    It can also be dangerous to stop any medication suddenly and without letting anyone know, so do book in to see them when you can if you're really struggling.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hi,

    Have been on letrozole only a week now. was on exemestane, but found my sense of smell has completely gone. So the oncologist put me on Letrozole. 

    I feel so unwell with having to take these. Aches, tiredness and so fatiqued.

    Have gone through shingles as well which has lasted for about 9 weeks.

    I just wished I didn,t have to take letrozole or any other. I,m even sleeping through the day.

    I feel that I can,t go on another 4 years on these, and feeling like this

  • I was very interested to read your post on letrozole. I had a lumpectomy and 17 lymph nodes removed last July. I was put on letrozole and immediately my arthritis pain tripled. The pain in my legs and knees was unbelievable. I am on steroids to help with the pain from the letrozole. I feel sick and fatigued a lot of the time. The thought of another  3 1/2 years on these things depresses me a great deal.al

  • I also have severe pain in my joints sometimes so bad I could cry , I seen a consultant who was really nice he said only option was to come off letrozole which won’t happen, it’s so unfortunate to have tumour removed only to have joint pain I have been on letrozole for  41/2 years 

  • Hi peeps I’ve been on letrozole for 2 yrs now. First 2 wks oh my. The worst was the joint pain...by the end of wk 1 I was literally having to go up the stairs on all fours. The consultant said when he gave me the meds... give side effects a couple of wks to settle down because the often do. End of wk 2 he was right I was walking upright again. Side effects I still get 2 yrs on...the odd night sweat so not every night, if I ever wake through the night for the loo my hands and feet ache but it gone by morning and my hair has changed texture and if definitely thinning. I take my tablet at 9 pm ( someone said it helped- don’t know if it does cos just figured gotta take it so went straight for the pm time.). I was originally told I’d be taking it for 5 yrs then a wk later was told it would be 10 yrs. Gotta admit if the pain I got 1st wk continued I’d have asked for something else... there are alternatives to be given. Everyone is different so we tolerate medication differently. The thread was started in early 2017 wonder how @eggy and everyone else is getting on x ️X
Reply
  • Hi peeps I’ve been on letrozole for 2 yrs now. First 2 wks oh my. The worst was the joint pain...by the end of wk 1 I was literally having to go up the stairs on all fours. The consultant said when he gave me the meds... give side effects a couple of wks to settle down because the often do. End of wk 2 he was right I was walking upright again. Side effects I still get 2 yrs on...the odd night sweat so not every night, if I ever wake through the night for the loo my hands and feet ache but it gone by morning and my hair has changed texture and if definitely thinning. I take my tablet at 9 pm ( someone said it helped- don’t know if it does cos just figured gotta take it so went straight for the pm time.). I was originally told I’d be taking it for 5 yrs then a wk later was told it would be 10 yrs. Gotta admit if the pain I got 1st wk continued I’d have asked for something else... there are alternatives to be given. Everyone is different so we tolerate medication differently. The thread was started in early 2017 wonder how @eggy and everyone else is getting on x ️X
Children
  • Hi just read your post . I am very worried I was told I have 2 cancers different ones in both boobs and need both taken off. The tablet they will give me for life will be latrozole. I have poli arthritis  that's all joints. My knees are relaxed and both hips. 17 and 16 years ago and need replacing again. My shoulders toes ankles wrists very bad. Is it worth going through this op on breasts I carnt walk without help have a scooter. I am 78 in sep and on my own since my hubby died in 2020. More pain and sleepless night I don't need.The exercises will be hard to do but not only that I have angina and 3 injections a day insulin. Could be better to leave thing alone and plod on. I hope you are managing to carry on ,people say you will Cope but I have had 7 years already coping. Thinking about you stay save xxx Florance25 big hug

  • The tablets are for the cancer not coming back so if you have a lot of pain now it won't notice I stopped taking my tablets for about a month now because I'm in so much pain but the pain is still there so it's got to be arthritis so I've am going to start taking them again  and start taking the painkillers and injections in my knees for the pain ..the pain in my fingers are terrible today  good luck on what you are going to do all the best in your fight