Not coping with taking my letrozole medication after breast

omg where do I begin had a lumpectomy 13/12/16 results 2 weeks later back in 10/1/17 for second operation again 2 weeks later back for results back in 7/2/17 for mastectomy all this was fine  it was like a rollercoaster didn't have time to think about myself only how my family would cope etc then a month on I started taking letrozole and bang I have never felt so unwell is this normal? Has anyone else experienced awful side effects from this tablet?

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  • I have been taking letrozole since July my neck and shoulders ache really bad all the time what would happen if I stopped taking these pills.

  • Hi Pat, 

    I'm sure you'll hear from the other members in this discussion soon but I just wanted to suggest you speak to your doctor before doing anything as they are in the best position to answer this question and any others that may be playing on your mind at the moment.

    It can also be dangerous to stop any medication suddenly and without letting anyone know, so do book in to see them when you can if you're really struggling.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Thank  you very much for this tip.  I will try it, thank you very much, all the best.  Ally

  • Can you advise me where I can purchase Arnica Oil and also do you massage it on your body or take a dose? Have pains in my l legs, hip and now back, and am having trouble getting up the stairs. It is turning me into an old lady! Many thanks for any help you can give me please xxxx

  • Hi 

    sounds just like I was! Horrid! 
     

    we bought about 5 bottles of out on line.... you rub it in on the affected areas two or 3 times a day .... it honestly did wonders for me.... you could just start off buying one bottle and see if it works for you

     

    Good Luck xxx

     

  • I'm in the same situation I had a full mastectomy with immediate reconstruction 18 months ago didn't need any treatment as it was very early stages had to have my nipple removed the oestrogen from the menopause caused it the early cancer cells invaded to the milk ducts glands something like that anyway I was fine taking letrozole until 4 day's ago hot flushes palpitations anxiety feeling weak I'm thinking about seeing the doctor it's getting me anxious about the next 3 1/2 years I don't think I could handle this everyday/night x

  • Definitely don't wait ask them if there are any other options - if you have a Macmillan nurse ask them they will support you - life is too short to be feeling pants all the time good luck snd remember to make sure they listen to you ! X 

  • Thank you so much for replying I'll make an appointment to discuss it with my doctor very much appreciated xx

  • You are very welcome 

     

    one thing I would say is that we are all different - I don't tend to read all the side effects I tend to go with the flow and see how it goes - what might not work for someone else could be fine for you x

  • Hi, I am suprised that you are on Letrozole as you are no where near the menopause, 

    im 70 and was put on Tamoxifen after having BC last year, I was then changed to Letrozole as I am post menopausal. Maybe worth mentioning to your doctor.

    I have similar symptoms as you and hate the thought of another four years on it, feel I've aged ten years.

  • Hey Lizzybee

     

    i was put into chemically induced menopause about 16 months ago because tomoxifen was no longer working for me .  I got on very well with letrozole for about a year, I was even able to continue with my running and horse riding then pot of nowhere I began to ache all over and got chronic fatigue - my Macmillan nurse and the oncologist were really good and gave me some other options. 

  • Hi , oh that makes sense , they do know what they are doing , that's good ! I think I need to ask for maybe an alternative one , as I was okay for a year and now, aches and pains , terrible night sweats . Hope all goes well for you x

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