I have been taking letrozole since July my neck and shoulders ache really bad all the time what would happen if I stopped taking these pills.

Hi Pat, 

I'm sure you'll hear from the other members in this discussion soon but I just wanted to suggest you speak to your doctor before doing anything as they are in the best position to answer this question and any others that may be playing on your mind at the moment.

It can also be dangerous to stop any medication suddenly and without letting anyone know, so do book in to see them when you can if you're really struggling.

Kind regards, 

Steph, Cancer Chat Moderator

Hi,

Have been on letrozole only a week now. was on exemestane, but found my sense of smell has completely gone. So the oncologist put me on Letrozole. 

I feel so unwell with having to take these. Aches, tiredness and so fatiqued.

Have gone through shingles as well which has lasted for about 9 weeks.

I just wished I didn,t have to take letrozole or any other. I,m even sleeping through the day.

I feel that I can,t go on another 4 years on these, and feeling like this

I was very interested to read your post on letrozole. I had a lumpectomy and 17 lymph nodes removed last July. I was put on letrozole and immediately my arthritis pain tripled. The pain in my legs and knees was unbelievable. I am on steroids to help with the pain from the letrozole. I feel sick and fatigued a lot of the time. The thought of another  3 1/2 years on these things depresses me a great deal.al

I also have severe pain in my joints sometimes so bad I could cry , I seen a consultant who was really nice he said only option was to come off letrozole which won’t happen, it’s so unfortunate to have tumour removed only to have joint pain I have been on letrozole for  41/2 years 

Only been taking letrozole for about three weeks and recently have really bad pains in one hip joint then the other and sometimes my knees. Some days I even have trouble walking. Seeing clinical oncologist today so hoping he can prescribe some relief. Cant put up with this for 7 years!!!

Hi 

I have had BC since 2013 am 44 with a family and full time job - I have had many side effects fro Letrozole including extreme pins and needles in my hands, terrible aches in my joints and most recently loss of appetite and fatigue 

my boss bought me a bottle of Arnica oil when I had the joint aches.... I went from being semi crippled by them to being completely free from pain !  That side effect has now gone and I am now trying to sort out my appetite  

Thank  you very much for this tip.  I will try it, thank you very much, all the best.  Ally

Can you advise me where I can purchase Arnica Oil and also do you massage it on your body or take a dose? Have pains in my l legs, hip and now back, and am having trouble getting up the stairs. It is turning me into an old lady! Many thanks for any help you can give me please xxxx

Hi 

sounds just like I was! Horrid! 
 

we bought about 5 bottles of out on line.... you rub it in on the affected areas two or 3 times a day .... it honestly did wonders for me.... you could just start off buying one bottle and see if it works for you

Good Luck xxx

I'm in the same situation I had a full mastectomy with immediate reconstruction 18 months ago didn't need any treatment as it was very early stages had to have my nipple removed the oestrogen from the menopause caused it the early cancer cells invaded to the milk ducts glands something like that anyway I was fine taking letrozole until 4 day's ago hot flushes palpitations anxiety feeling weak I'm thinking about seeing the doctor it's getting me anxious about the next 3 1/2 years I don't think I could handle this everyday/night x

I'm in the same situation I had a full mastectomy with immediate reconstruction 18 months ago didn't need any treatment as it was very early stages had to have my nipple removed the oestrogen from the menopause caused it the early cancer cells invaded to the milk ducts glands something like that anyway I was fine taking letrozole until 4 day's ago hot flushes palpitations anxiety feeling weak I'm thinking about seeing the doctor it's getting me anxious about the next 3 1/2 years I don't think I could handle this everyday/night x

Definitely don't wait ask them if there are any other options - if you have a Macmillan nurse ask them they will support you - life is too short to be feeling pants all the time good luck snd remember to make sure they listen to you ! X 

Thank you so much for replying I'll make an appointment to discuss it with my doctor very much appreciated xx

You are very welcome 

one thing I would say is that we are all different - I don't tend to read all the side effects I tend to go with the flow and see how it goes - what might not work for someone else could be fine for you x