Tongue cancer

Hello all

I was diagnosed on Monday with tongue cancer! To be honest I am all a bit numb to it really. In my head I have a lump and I am aware that lump is cancer but don't associate it with me having cancer is that weird??

I am so lucky I have had the most amazing service from the NHS so far they have acted quickly and the hope is they can cure it. I am booked for an operation in 3 weeks to remove the lump and my lymph nodes and I am scared about that but know this needs to be done to get rid of the lump. 

What I am really struggling with is eating and drinking now. My mouth is so painful I don't know what I should do. When I met with the consultant I was so overwhelmed with the information I was being given I didn't think to ask him what I could do. I am also pregnant so it's important that I am eating and drinking enough any advice or ideas?

thank you for reading

 

  • Hi trinny

    sorry to hear your news, but you are nearly there

    the radio therapy is a challenge but we all get through it in our own way

    i think I sent you my blog with the tips outher people gave me and some I picked up along the way

    so when do you start.

    wishing you all the best 

     

    vatch

  • Hi Everyone 

    sorry for the delay in responding things have been pretty rubbish. 

    So long story short I've been given 3 months to live as the cancer is very aggressive and I have got mets in my lungs. No a great situation to be in with a 5 week old baby but unfortunately that's where I am. I don't really know what to say about it other than I'm really gutted.

    not really sure what else to put so will sign off here but I will be back in a few days when I've had a bit longer to think about the situation 

    trinny x

  • Trinny

    im so sorry to hear your news ...... and I'm lost for words as I guess you are

    Your time with your family is precious now so don't worry about updating us

    we will always be hear if you need to sound off or just chat

    i really don't know what else to say apart from the fact that my thoughts are with you and your family at this time

    vatch

  • Trinny 

    I'm so very sorry to hear that news.

    Im lost for words, I can't begin to imagine how you're feeling.

    My thoughts are with you you and your family, keep strong and keep fighting for as much time as you can with your precious baby and family xxx

  • Trinny

    i just thought I would drop you line to say that we are all still here for you on the site and thinking of you and your family at this time

    keep strong girl

    vatch

  • Hi

    I am just about to complete my 2nd week of chemo/radio for my tongue cancer. I have to have daily RT and weekly Chemo.

    I really look forward to a pint of full fat milk with Chocolate Nesquick and 3 ice cubes in the morning, it is really cooling and goes down well. I have hand held liquidiser to blitz all my food and really love greek yogurt with the fruit jam in the bottom straight from the fridge. Omlettes are a bit difficult but are quite good as well as long  as the bits you put in are cut small.

     

    Hope that helps (Honestl try the Ice cold milk in the morning)

    Good luck

    Nick W

    I wasn't given a surgical option but I try to allways look upon my treatment as my friend who is going to help me beat this thing.

     

  • Hi Trinny Just wanted to let you know that I keep thinking about you and your terrible news. I can't begin to tell you how sorry and sad I feel for you and your family. I hope you are at home having quality time with your baby. God bless Carol x
  • Nick

    glad to hear that treatment is going so well for you .....  enjoy all these things whilst you can. It's different for us all but I found major changes in week 3 .... loss of taste, types of food I could not take and new ones I could

    i wrote a blog whilst I went through treatment and my page on food might be of interest to you gammaraygary.wordpress.com/.../

    You will beat it so keep us informed on how it's going

    vatch

  • Hi Vatch

    Thanks for that. I am expecting changes, some have allready started,ie soreness,swalowing etc. but I am finding it interesting trying to plan food that is acceptable.

    I'll check your blog

    Thanks Mate

    Nick