Hi - Newcomer - Prostate Cancer

Hi - I was recently diagnosed with Prostate Cancer - waiting for bone scan and further MRI to see how far it has spread, if at all.  Feel fatigued all the time - really washed out and exercise is a real effort.  Used to run regualrly but struggle to walk far now.

  • Hi Jools,

    Thanks for posting on here. I know all too well how it feels waiting for tests/results as over six years ago I was diagnosed with prostate cancer. But as my wife had made me go to my GP, it was caught early and I have made a good recovery.

    Have they started you on hormone therapy for that can make some men feel fatigued and give pain in the joints. I never had that problem luckily. I would mention this to your medical team as they may be able to do something about it

    I wish you good results and hope the cancer is still contained in the prostate capsule, Brian.

  • Hi Brian

    Thank you very much for replying - I am not on treatment yet - still waiting for bone scan and MRI - my diagnosis is 7 on the Gleason Scale - medics seem to be suggesting radiotherapy or prostate removal as most likely options - thanks again - great to get another view.

    John

  • Hi John I am also recently diagnosed with a Gleason score of 7 , my bone scan was fine but have been recommended to do surgery , its very hard to get your head around all the treatment options keep well good luck with the choices Ken
  • Hi Ken -thanks very much for your response - I have got MRI tomorrow and bone scan on Friday - think surgery will probably be the outcome - possible side effects worry me but radiotherapy doesn't seem much better - just have to see - all the best to you - let me know how things go - cheers John

  • Hi Buddy 

    I thought I would drop you a line to let you know it's not all doom and gloom I am 6mths post surgery and fully continent and yes use viagra occasionally it's OK with or without and getting better all the time.

    It seems like a long journey but I sometimes forget I had the opportunity now and my life is returning to normal I don't use any pads and feel blessed to be cancer free.

     

    I had my moments after surgery where I thought what have I done but it passes as you recover and your body and nerves heal.

    I had nerves spared on one side and very high gleeson so had no options but regret nothing and have returned to work as a physical instructor with no limitations!!

    Everyone is différant and have their own way to deal with things and I would have loved someone to have told me a balanced view before I had the opportunity as I had a lot of anxiety that did not help and turned out to be unjustified.

     

    Well good luck and let me know how you get on?

    I work for the NHS and researched my surgery to death before I went in lol

     

    There are some great guys on here who know their stuff so feel free to message me and will try and fill in any gaps for you.

  • Hi - thanks for that excellent response  very, very helpful - I have an appt next week and I am definitely favouring surgery - of course, they might not agree but I don't fancy the radiotherapy or just leaving it  - I will let you know how I get on - the fun just keeps on coming!

    Thanks again

    John