I know how you feel! Told no chemo then got score which suggested chemo. I’m so upset and spent agonizing weeks researching but signed up for chemo next couple of weeks. They must tell you what changed the result??

Its so hard thinking you are not having to have chemo then told you are. I wonder if they did the oncotype test? I would think they’d say but it does seem odd unless pathology changed after surgery? The NHS do the test now... I was stage 1, clear etc. I get confused as I look at stats for it and it says high 90%’s cure rates..and that was before the gene test. I’m fed up as don’t want to think about next few months! 

Xxxx

Also forgot to say they don’t usually test HER+ as they usually have higher score so altered the stats so the oncotype just done on estrogen ones. Xxx

Isn't it a sucker punch! I see oncologist this wed , have a list of questions for him...my surgeon told me that a neg rarely changes to a pos ( trust mine to) 

I was all set for radio.....then this! And to top it I will need the herceptin jabs for a year....yuk! 

So many thoughts spinning around my head.....it's just all so horrible.....you're not on your own hun......xxxx

So glad:) woke up and cried this morning. Sucker punch is right. They called yesterday and said I had to be fitted with a portacath.  It’s all so bewildering. But I guess that’s how it is. They told me 3 cycles of EC and 12 weekly Paclitaxel. I’ll never stay the course! I saw two oncologists and they both said different things about the oncotype test. But what stays in my mind is that this is preventative chemo and will only benefit 15 in 100 women so the rest get it for nothing. And then they said it’s no guarantee! Gave me lots of confidence lol

ive read a lot about chemo and it’s not always the answer though I know in some cases it’s lifesaving.. my friend got a blood cancer after her preventative chemo but doctors said that’s v rare. But being a Woody Allen anxious type it didn’t comfort me much!

Good luck with appt. oncologists are a breed apart! Let me know how you get on.

xxxxxx

Will defo let you know, it will be interesting to compare notes.

I do start reading up on chemo but after a while have to go and do something else as it's all just so overwhelming! It didn't help when a so called friend put a post on Facebook saying...chemo kills half of cancer patients......wtf?????

And there's a part of my brain wishing and hoping the oncologist says....you're 50/50 ....so it's up to you....but my cancer nurse would have already said that.....wouldn't she ?

And the portacath makes it all so real.....cements it....no going back....eek!!! 

Just glad I have you lot on here, you're wonderful.... xxx

Forgot to say that as a celebration of no chemo we got s puppy!! Omg talk about bad timing... he’s a distraction fir sure but like having a toddler. Don’t know how it’ll pan out while doing chemo... my husband not a dog man! But thought it’s now or never so went a got a cuddly Cavalier! I’m trying to put chemo off for another week so he can get last vaccinations and get daycare for him:(

Hey marlyn (love this name)

im with you on the chemo thing. To some it sounds a breeze others get life threatening infections! Ignore the FB thing. I read something like that somewhere but it’s chemo done on very ill patients do it finishes them off. Not us preventative specimens who actually are fit and cancer free and then have to poison ourselves BUT my very close friend had the chemo for BC and two years later got a blood cancer as a direct result of chemo, the docs told her that. It’s not common but it happens also long term heart problems. It’s serious crap!! I saw the film Heal last night and it inspired me to go natural as I wouldn’t be having chemo but for onco score. But then woke up today thinking ... just do it! Anyway finally seeing a breast care nurse today. I haven’t had one since I was diagnosed as she’d left!!! It’s been hard as they know more than docs. Are you still HER+?? Get it checked! It’s unusual for it to change. Maybe you will get oncotype. Yours was grade 2 was it? I have to stop going on forum threads about recurrence. Honestly seems random tbh. Worries me sick and haven’t even had treatment for this yet!!! Plus been told can’t pick up dog poo and be around animals too much while in chemo. Omg will have to buy a hazard suit to stroke puppy‍♀️ Maybe nurse will tell me I’m too neurotic to go the chemo... she’d not be wrong lol

Hope appt goes your way sweetie wishing u luck! My onco said that’s the main ingredient !!!! 

Hi, I start chemo next Thursday.....consent forms signed...felt very odd signing for something that will make me ill and possibly have long term effects when I am feeling so well!  My her2 was defo pos, they re tested it as it looked abnormal in the first place....oncologist said he couldn't guarantee there wouldn't be a rogue cells floating in me blood stream.....so...chemo here I come! Got a smashing wig today though, had a blast at the salon xxx

Hello, thank you for such a positive post. I did wonder if my Rubi will be able smell the chemo....but I certainly won't be pushing her away, she is my nurse at the mo and helps no end! 

I think when I read all the side effects I convince myself I will get everyone! But I can be quite the drama queen...lol xx