Hi Amber

Its the waiting thats the worst, I know it seams impossible now but somehow you will find your way of coping with this.  Once He has received a full diagnosis thats when you will know more.  For now I suggest you write down any questions that come to mind ready for when you see the consultant. The other thing is to talk to each other but if he does not want to dont push it too much for now.  Take it one step at a time.

Dont google because you will find all sorts of things.  Have a look on this web site for information.

I think those who are saying it will be fine are trying to help in their own way but until you are faced with this situation its not something you can imagine.

River

thank you ever so much for your reply :)  it really is helpful we have gone over what we want to ask the dr just have to wait for the phone call to go back in and then know what to expect next