Dad just diagnosed with non small cell lung cancer

I'm really new to all this chat room stuff but have been told by many that it may help me deal with things, basically my dad has just been diagnosed with non small cell lung cancer! We have been told that unfortunately due to the position of the tumor the doctors can't operate , and have been told they can't cure his cancer! He will however soon be starting a treatment programme of chemo and radiotherapy, iv been doing research on it as we weren't really told what stage he is at or any real prognosis, , all we know is that the fluid he had drained did not contain cancer cells but in the same breath it has gone to his chest wall, just trying to make sense of this horrible situation!!! 

  • Thank u! No nobody has even mentioned a stage yet, iv been looking online at the different stages trying to see which one best matches him but to be honest it's just worrying me more as he could be in any of them! Maybe find out more on Monday when he meets his oncologist for the 1st time to discuss treatment options. 

  • Oh wow that's great news, go you! The doctors have said that my dads is a squamous non small cell lung cancer, the tumor itself is 6cm , we seem to have been told lots of bits of information , just not what stage, kinda like a jigsaw just trying to put all the bits together. I'm really pleased for u that u have kicked this diseases ***!! Xx

     

  • Your welcome oh yes the waiting and not fully knowing is really hard!! I will definitely let you know how it all goes on Monday, thank you for chatting , it's right what iv been told, it really does help to talk to others about things xx 

  • Wow this is really weird for me because I've never done anything like this before and only just joined, leaving a really woeful profile and then see your post. 4 years ago I was diagnosed with adeno carcinoma in my right lung, mine was not operable either and I've have an extra 4 years after gruelling chemo and radio for several months. The treatment was awful, I wont lie, but without it I was told I had an "unlikely 12-18 months", I guess responding to you makes me reflect that without that treatment I wouldn't have had 4 years. Mine is now back and I dont know yet what the future holds, I wish you and your dad well. I was told that its a battle and to recruit as many people as possible to help fight the battle. Good luck

  • I'm finding the same Yvonne they only give u bits and pieces of information, I had to ask what stage then I realised it was at a really late stage grade 4 tumour and had spread, but like I said in my other thread u really wouldn't know it was at a late stage he seems fine. So I don't think u can guess or work out the stage. There is normally someone u can contact to ask these questions though.my dad still can't believe is diagnosis he feels so well, he feels a fraud going to chemo today, it's so strange . X

  • Hi, Sue. I am so sorry to hear about your dad, but do have a positive attitude about it. My daughter had the same, and did not make it, but all of the time that she had, she was very positive and upbeat. Her favourite saying was,' onwards and upwards, Mom', and we had some really good times together. She had one session of chem, but it did not suit her, but she still had radiotherapy, which she was happy to do. She said that she wanted to live each day, and not look towards the future - that would take care of itself. We all took our lead from her, and that meant that we had ' our Sue' right until the end. It is so important for everyone around your dad to have this positive feeling too, as it will lift him and keep him in better shape, both mentally and physically, to fight the battle he has in front of him.It will also help you, so know that we are all thinking about you, and fighting with you and your dad. xxx

  • all my prayers to your dad. hope he will recover soon. instead searching for the stage, why cant to try out with the expert nearby you in the city? 

  • I am going to ask on Monday when we meet with his oncologist, but the days in between, not really knowing is a bit of a nightmare to be honest, I'm the sort of person who likes to know all details! 

  • Iv given up trying to work it out and looking online, it's doing me no good at all, I'm just going to ask the question on Monday I think. It's crazy how well they seem isn't it considering what's going on in their bodies! X 

  • Aw nannyp I'm so sorry to hear that it has returned, such awful news!! But I'd like to thank u for sharing your experience, it's good to hear of people who have beaten it, if only for a few years, it has shown me that there is still hope to have my dad around for a few years yet! I wish u all the best of luck for the future xx