Just thought I would say hello and hopefully others with experience of kidney cancer will come and share their story with you.
We have some information on treating kidney cancer here which we hope you will find helpful. If you want to talk to our nurses, they are available Monday to Friday from 9am to 5pm on this free number 0808 800 4040. You can ask them any question about kidney cancer treatment and they will be happy to advise you.
Sorry to hear of your diagnosis.I had a radical nephrectomy about 3 years ago and now I have two nodules in my body measuring 25x25 mm each which my oncologist says is more than likely return of kidney cancer. If that is the case I will find myself in the same situation as you. I've often wondered about having chemo or not if the cancer Returns. I've read a lot into it but i will make a decision if and when the time comes.
I have a grade 3 Renal cell carcinoma grade 3 which was removed by radical nephrectomy in December 2010 and has not spread yet but the Libervich scale was 6 which is high- the mass was 2 kilos in weight. I cope by laughter and am cracking jokes at work all the time at work now - so if you find a chubby male nurse laughing his socks off it's probably me Lol.
Seriously though it's hard but keep on living day to day and make each day a good one.
Hi John, i have grade 3. No spread as yet but like you from a nursing background i try my best to keep happy and as active as I can. I dont want to go down the line of chemotherapy and surgery as my symptoms have been there for about 4yrs and have never been investigated untill i knew something was wrong . I had to ask for a ct scan to confirm my suspicions. Hope all goes well for you, my gp has been a star helping me with my decision.
Some of your replies seem to have been removed as you had stated that you had chosen the date to end your life and that your partner was not in agreement but supportiv, altho refused to be a part of your ending your life. You are apparently reviewing drugs to do this as dignitas is not an option - these are all things that you had stated here and on your other thread.. You have another thread called 'kidney cancer' running about the same subject.
Hi hyacinth and welcome to the forum. I find it so strange that people in a similar situation to each other can have such different takes on things and am interested in what you have to say. It seems very extreme that someone at such an early phase of their diagnosis would make such massive decisions about their future. Unless your GP is a very bad one and he acted badly - personally I would feel relieved that my disease had given me no symptoms for him to follow up on in four years and that it was still in situ and presumably potentially curable because of that?
I think it is really frightening that you would consider ending your life because you have (in your opinion) witnessed distress at end of life with a handful of people. Drugs usage may be misinterpreted as distress as you will know. These people were people you loved and no doubt would feel extremely distressed at losing them whatever the circumstances. I have been with approx 50 patients as they died and can honestly say only felt uncomfortable at one of these times and I actually blame the palliative care team for that, not the illness.
As someone on an earlier thread pointed out, no one has the knowledge - Ill or not - of when or how they will die. What's to say that you committing suicide alone may not be traumatic and painful? What is the rush? Can you not just live alongside cancer and see how it goes? I was told in February 2013 that I had 4-6 months to live and referred to the palliative care team. I am still here and enjoying life. I would have lost two precious years of life and missed my daughter's wedding if I had followed your thoughts - how tragic.
I hope you can take a step backwards and enjoy your life here with your partner and friends. Think about living with cancer, not dying of it. I am sorry to not advocate your thoughts and have no problem with you disagreeing with me either. It will be good to see others opinions on the site. X
Hi the choice is of course yours, and yes chemotherapy isn't nice for anyone,.
I had a choice in Feb 2016 when I was diagnosed with prostate cancer gone to lymph nodes spine ribs pelvis and a lung its classed as palative care, without treatment I would have died that year ,I had problems with chemo and im on permanent hormone therapy,im still having a good life and a carer for my wife who has Alzheimer's and Parkinson's plus other brain problems.
Good luck with your future, long or short, please make the best of it.
