My mum has inoperable lung cancer, please hold my hand

Last week, my mum was diagnosed with squamous cell carcinoma in her lung (I have been deliberately not googling it). 
It has spread to her windpipe and chest cavity (two lumps up near her shoulders) and is inoperable.
In two weeks she will begin chemo to hopefully give her a longer/better quality of life. Though they wont know how successful this will be until about Christmas.
I live about 200 miles away and have been travelling down for her appointments so that she is not alone and taking her out for lunches/shopping/afternoon teas while waiting. I also helped her break the news to the rest of the family.
I have remained positive and upbeat every time Im with her and then fallen apart on the train on the way home.
I asked if she wants me to come down and go chemo with her but she said no. She said that there will be times when she really needs me and so will call me then, but not to keep leaving my work/family to go to her, also she is trying to remain as independant as she can for now.
I just feel so lost. I want to do something, to help.
I know that a big part of this (selfishly), is because I need to feel like there is something I can do. That if I help enough or do enough then she will be OK. This chemo will work (It has to work, it has to. Thats the thing Im holding on to to keep me sane).

I am absolutely terrified, I just keep thinking it has to work, it is the only chance we have and it cannot fail, so again I have started waking in the night having what I can only describe as panic attacks at the idea of losing her.

I also panic about what if its worse than we thought? It has already spread into her chest cavity (2 lumps up near her shoulder), and last year she had quite a lot of pain in her legs and her GP said it was arthritis, but what if it is part of her cancer? Should that be looked at again to make sure or do I just say nothing in case they review it, decide it is part of her cancer and then say that its too bad/too far for any treatment.

I also realised last night that I have a friend who's father went through the same thing, and he responded well to the chemo but sadly passed away 18 months after being diagnosed (In a moment of madness I actually considered texting this friend to ask how she coped, but realised that could be more hurt/pain for her, and that would be selfish).

Its just so hard having to keep all this in (my mum only wants close family to know at this point), I feel so frightened.

  • Hi there Ok consider hands held.

    Your Mum sounds like a very strong lady.  The best thing is to be led by her she will call for you when she needs you so the best thing is to keep in contct by phone.  I am sure that feeling helpless is awful (I was the one with cancer) but the patient is the one who knows what they need and it would not help if she thought that you were putting your life on hold.  Staying posative is the best thing you can do.  When my Mum asked me what she could do for me I said stay posative  try not to worry and dont mither me. 

    Practical help can be done later it depends on how your Mum reacts to the treatment. I was ill for a few days during my 3 week cycle but the rest of the time I was Ok and apart from staying away from people with bugs (like colds) managed most things.  She may find that heavy housework becomes to much at the end of her treatment - due to tiredness- so a days cleaning for her may be whats required.  As I said be led by her and please dont feel guilty that you cannot do anything as thats the last thing she would want.

    best wishes

  • I am also going threw this with my mum she is 55 me and my sister and 5 grandkids we are there 24 hours if she needs us she also has this even though its in her lung and some lymphs and a spot on he renal gland they wil not do suragery she startd chemo 2 weeks ago its sceary and awful me and her are inseprabul so I hate it when she has a bad day u need to be there and be brave hun think posative all u can do my mum is strong and so are we she has been offerd a clinical trile after her chemo my fingers are crossd for it just make memorys when u can and try not to let the anger and upset take over x x