Radioactive ion injection for sentinel node removal

When I searched for radioactive ion injection in the cancer chats prior to having it done there were no results so I am writing this in case any one else does a similar search. I have invasive breast cancer grade 2 and initially had a lumpectomy done as it was thought I just had DCIS. Once the invasive cancer was discovered I had to have a Sentinel node removal (which I had on Monday) to see if it has spread. I was very very anxious about having to have the radioactive injection in my breast so for anyone else about to have it this is my experience;

the first thing to be clear about is no one can tell you what the level of discomfort/stinging is likely to be because everyone will feel it in their own unique way. The most important thing to share with you is that the whole process is incredibly short , the actual insertion of the needle and the injection of the ion itself took less than a minute- so only seconds- read that again - only seconds. It is very very quick. The needle was inserted into the edge of the aureola not actually into the nipple itself as I had thought. The nurse was wonderful and explained every step of the process. Because my nipple has lost some sensitivity post surgery I actually didn't feel anything, most people feel some stinging I was told. It really wasn't the awful experience I was anticipating. I cried with relief when it was done because I had got so hyped up about it. My nipple and breast area is tender today and I am using ouch cream (from blended therapies ) which is amazingly soothing. Hope this helps someone!

Parents
  • Thanks for this...having mine next week. 

  • Best of luck Carol612 - hope everything goes well for you and stay in touch.  Have found it really helpful reading posts on this website and also emailing about experiences.  I had my first radiotherapy today and it was really helpful to know what was ahead of me through Kalisunshine's posts as she is ahead of me in a near identical position.  I am also on my third week of Tamoxifen which has not caused too much upset, but I definitely feel different and am not sure whether my P will arrive this week.  How are you doing though? x

  • To bernienb and kalisunshine  thank you both so much for your conversations. I have been sitting here reading all of them and they brought tears to my eyes. You have been a good support to each other and an inspiration to me. I have just been diagnosed and I don't know what to expect but I have learned a lot from you both. I hope you are both feeling positive and strong. Take care xxx

  • bernienb and kalisunshine

    Yes me too diagnosed lumpectomy node removal awaiting results mine is ER and HER2 but reading your posts really helped xx

  • Hi Fraseh - thank you for your kind words. I would have replied sooner but have not logged on for a few weeks.  How are you getting on with your treatment and how are you feeling?  I hope that the exchanges have helped.  Although its good to talk to friends and family, it's really informative hearing from other people's experiences and I think it makes you feel a bit better about things.  It really helped me corresponding with Kalisunshine, her posts were so positive.  You will get through it all - I don't know how we do as it is so overwhelming at first but the letters, appointments, ops check-ups etc, it unfortunately settles into our lives and we have to go through it all.  Sometimes it feels as though it hasn't happened at all.  But then if you start to think about it quite a lot, it can feel quite suffocating and your heart starts beating really fast as you have the thoughts of what if it comes back, going through your head.  But I guess that is completely normal when you are diagnosed with cancer and are treated with it.  I have two friends, both are about 6 years younger than me, and they are both in remission and had late diagnosis, so this gives me a lot of hope that they are both doing so well.  Take care and please stay in touch. It's always good to write and let your feelings out etc.  Best of luck....xxxx

  • Hi Raynera 1949 - how are you?  I have just replied to Fraseh above your post and I am so glad that our posts have helped even in some small way.  Kalisunshine helped me so much as she was ahead of me in the treatment and it was near identical diagnosis, so she gave me a lot of information and most of all to keep positive.  How are you getting on - did you get the results yet?  I really hope all is going well.  I saw the oncologist 2 weeks ago for my 6 weeks post radiotherapy check up.  He was pleased with everything and I was fortunate not to have infections or broken skin from the treatment.  Must have helped with all the sun damage from years ago that toughened up my skin! Although I didn't like to say that to him!  The Tamoxifin is going okay and I thought I would have a lot of side effects, but I really can't seem to pinpoint anything.  Sometimes I get a little hot all of a sudden or a bit of a headache, but its really fine.  I am just grateful that I had mininal treatment.  When I read about the lady who has two young sons and who writes a blog, Storm in a *** Cup, it is heartbreaking for her that she has been through so much and holding off her treatment to enable her daughter to be born, and then she didn not survive.  This lady is just truly amazing and I hope the treatment works for her and she gets through it.  Take care and stay in touch and it really does help to write on this site.  Keep going...xxxxx

  • Hi Bernienb - finally getting round to replying, apologies for the delay. Now that I am back to work full time I simply don't know where the hours, days, weeks go, I am just so busy. I continue to be well but Tamoxifen hot flushes are the bane of my life! I suppose I was very near menopause so perhaps that it why it seems to have really triggered it off. Other than that though there doesn't seem to be any other Tamoxifen side effects. My friend who has just finished her 5 years has agreed to continue to 7 as it has been no issue for her and her oncologist thinks she might as well continue.  Mine suggested I try acupuncture and I have had weekly sessions since Xmas, do think it has eased the night flushes a bit. However it is very expensive so not something I can keep doing. I understand that I should be able to move to maintenance sessions in a while- monthly. It has actually relieved my pain from my hip as well so it has been useful. I am trying very hard to think about myself more often than previously and I am working much closer to my working hours now and not feeling guilty when I go home on time. Also trying to eat better been making packed lunches for a month now and actually moving away from the computer to eat! Having cancer does make you rethink priorities a little. To be honest there are days and weeks now when I don't even think about having had cancer. My baby boob is beautifully healed - just looks a bit smaller and a bit less full. My nipple is painful to touch occasionally which makes me a bit protective of it but all my scars are pale and becoming very less obvious. I am thinking of going to have my radiotherapy dot in between my boobs lasered off - it sits there constantly looking at me and spoils my cleavage. I think my oncologist though I was mad but she said I could have it done after 6 months! I am glad to read that all is well with you- what did I tell you ! Life goes on- we are the lucky ones!       I would say that everyone forgets fairly quickly what  you have been through, sometimes that is good but sometimes not so. Continue to be very kind to yourself, take holidays spend time with love ones, cherish every day. It was lovely to read that someone else had been helped by our conversations, made me feel very emotional. I don't suppose I will be on here very often now but will post mammogram results in May hopefully all good news. Take care Bernienb and thankyou xx

     

     

  • Hi Fraseh, I was very touched to read that our conversation had been useful to you. Where are you now on your journey? I have found this site so very useful, I am one of those people who has to read and read and read, for me knowledge is power. I know some people prefer to not know but not me! Finding Bernienb and having someone outside of my family and friends to connect with was such a precious thing and I have really loved talking to her and surviving together- I know I always say it but we really are the lucky ones. I hope that all is going well for you , it is a journey of ups and downs, small joys and tough moments but I wish you well. Happy to chat any time xx

  • hi Raynera, how are you getting on now? I was pleased to read that our conversation had been useful, I remember so very clearly the endless waiting and the anxiety that causes. Everything felt so much better when all the questions were answered and all the results were in. I found it so much easier to get on and deal with everything once I knew what I was dealing with. I hope that you are managing to stay positive and that you have good support. This is a brilliant place to off load your worries and find support. I was very lucky to find Berninb - she has been wonderful to talk too. Please come back and chat again if you need to, take care xx

  • Hi great to hear from you and I know its kind of a time thing to get on here etc. Glad to hear you are getting on well and I will definitely take your advice on board - really have to re-think the way you run your life and making time for yourself and not getting stressed out by inconsiderate people and things.  It's hard though not to take things to heart and if you are a worrier - I guess we have to change things.  I am going back this Wednesday to see the Cancer Care Nurses - it is an information appointment etc.  But I need to raise an issue as I think the boob is a bit swollen and feels as though there may be fluid inside.  I may be imagining it and then I thought maybe it's water retention before my period and during, but it isn't going down.  It just feels a bit heavier if you know what I mean.  I also have an appointment in March with the genetics department at the hospital.  My dad had colon cancer and died over 16 years ago.  My Gp referred me to the genetics department to see if they would investigate whether it was an inherited issue as his brother has had it, and various relatives all died from it on both of his mum and dads side.  They have asked permission to run tests on his tumour (which is now 20 years old and that is amazing).  However, I wasn't expecting to go and see them for another few months so maybe they have found out whether there is a genetic link or not.  My sister is going to come along with me too so it will be interesting to hear what they say.  I'll let you know, but there is no link between my breast cancer and my dad's bowel cancer.  He was very unlucky and although he visited the docs a few times, they sent him away with treatment for piles.  He was never the type to go to the doctor, so this should have rang warning bells.  He had chemo and radio and a few ops but they told him it was aggressive and he fought very hard for three years.  It was awful for him as he just wanted to live and had not even retired.  We still miss him and think of him every day - he was a truly lovely man and it sounds corny, but everyone loved him - no one could ever say a bad word about him - just an honest and kind man.  The good ones always go first and I know he is helping me and my family all the time even though we wish he was still here so much.  Take care and we'll catch up again.  Take it easy and thank you too!  xxxx

  • Hi Bernienb- just dropping in to see how you are doing? X
  • That's so weird.  Just thought I should log on and catch up.  How are you?  And your message was there. How are you doing?  Have you had any check-ups?  I had a mammogram a week last wednesday but no results as of yet.  Feeling effects of Tamoxifin - eyesight has deteriorated a bit - but am getting them checked regularly as worried that the tablets are causing this.  Apart from that am okay and dealing with everything.  What about you?  So good to hear from you? I really hope you are keeping well?  Please let me know - I think about you often and hope you are okay. xxxx

Reply
  • That's so weird.  Just thought I should log on and catch up.  How are you?  And your message was there. How are you doing?  Have you had any check-ups?  I had a mammogram a week last wednesday but no results as of yet.  Feeling effects of Tamoxifin - eyesight has deteriorated a bit - but am getting them checked regularly as worried that the tablets are causing this.  Apart from that am okay and dealing with everything.  What about you?  So good to hear from you? I really hope you are keeping well?  Please let me know - I think about you often and hope you are okay. xxxx

Children
  • Hi, all is well. I had my one year on mammogram in may and it was all clear- funny how it feels as if that means all clear for now. I can't get it out of my head that it will come back. Tamoxifen for me is just all about hot flushes- pretty relentless but I will have done my first year in November. I am off work recuperating after having a hip replacement operation- the operation I was supposed to have last year - before I was diagnosed with cancer . It is a big op and recovery is hard work but I am doing ok. Really glad you replied I too have thought of you and hoped all was ok for you. Sounds a bit worrying about your eyes can anyone say for definite it is Tamoxifen? I hope you are otherwise well? Good to hear from you. I have sent you a private message request- I think I did it right! Take care xx