Radioactive ion injection for sentinel node removal

When I searched for radioactive ion injection in the cancer chats prior to having it done there were no results so I am writing this in case any one else does a similar search. I have invasive breast cancer grade 2 and initially had a lumpectomy done as it was thought I just had DCIS. Once the invasive cancer was discovered I had to have a Sentinel node removal (which I had on Monday) to see if it has spread. I was very very anxious about having to have the radioactive injection in my breast so for anyone else about to have it this is my experience;

the first thing to be clear about is no one can tell you what the level of discomfort/stinging is likely to be because everyone will feel it in their own unique way. The most important thing to share with you is that the whole process is incredibly short , the actual insertion of the needle and the injection of the ion itself took less than a minute- so only seconds- read that again - only seconds. It is very very quick. The needle was inserted into the edge of the aureola not actually into the nipple itself as I had thought. The nurse was wonderful and explained every step of the process. Because my nipple has lost some sensitivity post surgery I actually didn't feel anything, most people feel some stinging I was told. It really wasn't the awful experience I was anticipating. I cried with relief when it was done because I had got so hyped up about it. My nipple and breast area is tender today and I am using ouch cream (from blended therapies ) which is amazingly soothing. Hope this helps someone!

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  • Thanks for this...having mine next week. 

  • Best of luck Carol612 - hope everything goes well for you and stay in touch.  Have found it really helpful reading posts on this website and also emailing about experiences.  I had my first radiotherapy today and it was really helpful to know what was ahead of me through Kalisunshine's posts as she is ahead of me in a near identical position.  I am also on my third week of Tamoxifen which has not caused too much upset, but I definitely feel different and am not sure whether my P will arrive this week.  How are you doing though? x

  • Hi - how are you?  Hope all is going well and tablets are getting better.  Last day of radio tomorrow.  It's been okay to be honest.  Just very itchy and a bit tired but hoping nothing further will happen as they said I may find itching and things like that get worse once the radio has finished.  Did you go back for a check up yet?  How is your mum - did she get results - I hope all went well.  Taking the tablets - it's fine so far.  Have had a few hot flushes, but it's not stopping my sleep.  A few headaches too, but apart from that fine.  Still having a period - this is my second since being on the tablets. I thought it may have stopped but not yet.  I don't mind to be honest though.  Feel emotional sometimes usually when on own in car coming home from hospital.  I walk past the Maria Curie department where patients are having chemo.  I keep telling myself am so fortunate I didn't have to have chemo too and pray for those patients that are going through it.  I will keep you posted and let you know how check up goes.  Really hope things good with you.  It's been a long four months. xxx

     

  • Hi , it has been ages since I posted and came on this site. Hoping that's a sign that I am putting it all behind me and moving on! I have my final appointment with my oncologist tomorrow so it all comes flooding back. I have decided to go on a course run by our local Maggie centre called "what next", it doesn't start until January but that has come round much more quickly than I expected so decided to do it. 7 week course looking at all things -diet, health, emotional well being etc etc . Think the idea is that after being under such close medical care for such a long time you can feel a big abandoned when it's all over. I don't really feel like that but reckon it could be useful just to reflect on the process before I parcel it up and put it metaphorically in a box at the bottom of my wardrobe!  The good news is that mum has had an all clear -all biopsys came back benign. Huge relief for us all. I am really pleased to hear that all has gone so well for you, great that it's over. I hope it continues well in the weeks after treatment. We made it!  Thank you for keeping it touch I have really valued your listening ear and for your support from afar! I hope you have a lovely Christmas and a very happy and healthy new year.  xxxxxx

  • P.s learning to live with hot flushes ! Wearing lots of Tshirts and waiting for cold winter to arrive!

  • That's wonderful news about your mum - I am sure you are all so relieved.  Sounds as though you are doing very well and I am glad that you are getting on with life etc.  Hope you had a good Christmas and New Year.  I did wonder how many more I will get to see - stupid thoughts that shouldn't be thought of!  Going to see the Oncologist next week so will see what they say.  Tablets are okay - coping with them and yes, feel temperatures have increased etc.  Hasn't really affected anything else which I am glad about, but I try to forget about them.  I will update you after appointment last night.  Really hope you are doing well. xxx

  • To bernienb and kalisunshine  thank you both so much for your conversations. I have been sitting here reading all of them and they brought tears to my eyes. You have been a good support to each other and an inspiration to me. I have just been diagnosed and I don't know what to expect but I have learned a lot from you both. I hope you are both feeling positive and strong. Take care xxx

  • bernienb and kalisunshine

    Yes me too diagnosed lumpectomy node removal awaiting results mine is ER and HER2 but reading your posts really helped xx

  • Hi Fraseh - thank you for your kind words. I would have replied sooner but have not logged on for a few weeks.  How are you getting on with your treatment and how are you feeling?  I hope that the exchanges have helped.  Although its good to talk to friends and family, it's really informative hearing from other people's experiences and I think it makes you feel a bit better about things.  It really helped me corresponding with Kalisunshine, her posts were so positive.  You will get through it all - I don't know how we do as it is so overwhelming at first but the letters, appointments, ops check-ups etc, it unfortunately settles into our lives and we have to go through it all.  Sometimes it feels as though it hasn't happened at all.  But then if you start to think about it quite a lot, it can feel quite suffocating and your heart starts beating really fast as you have the thoughts of what if it comes back, going through your head.  But I guess that is completely normal when you are diagnosed with cancer and are treated with it.  I have two friends, both are about 6 years younger than me, and they are both in remission and had late diagnosis, so this gives me a lot of hope that they are both doing so well.  Take care and please stay in touch. It's always good to write and let your feelings out etc.  Best of luck....xxxx

  • Hi Raynera 1949 - how are you?  I have just replied to Fraseh above your post and I am so glad that our posts have helped even in some small way.  Kalisunshine helped me so much as she was ahead of me in the treatment and it was near identical diagnosis, so she gave me a lot of information and most of all to keep positive.  How are you getting on - did you get the results yet?  I really hope all is going well.  I saw the oncologist 2 weeks ago for my 6 weeks post radiotherapy check up.  He was pleased with everything and I was fortunate not to have infections or broken skin from the treatment.  Must have helped with all the sun damage from years ago that toughened up my skin! Although I didn't like to say that to him!  The Tamoxifin is going okay and I thought I would have a lot of side effects, but I really can't seem to pinpoint anything.  Sometimes I get a little hot all of a sudden or a bit of a headache, but its really fine.  I am just grateful that I had mininal treatment.  When I read about the lady who has two young sons and who writes a blog, Storm in a *** Cup, it is heartbreaking for her that she has been through so much and holding off her treatment to enable her daughter to be born, and then she didn not survive.  This lady is just truly amazing and I hope the treatment works for her and she gets through it.  Take care and stay in touch and it really does help to write on this site.  Keep going...xxxxx

  • Hi Bernienb - finally getting round to replying, apologies for the delay. Now that I am back to work full time I simply don't know where the hours, days, weeks go, I am just so busy. I continue to be well but Tamoxifen hot flushes are the bane of my life! I suppose I was very near menopause so perhaps that it why it seems to have really triggered it off. Other than that though there doesn't seem to be any other Tamoxifen side effects. My friend who has just finished her 5 years has agreed to continue to 7 as it has been no issue for her and her oncologist thinks she might as well continue.  Mine suggested I try acupuncture and I have had weekly sessions since Xmas, do think it has eased the night flushes a bit. However it is very expensive so not something I can keep doing. I understand that I should be able to move to maintenance sessions in a while- monthly. It has actually relieved my pain from my hip as well so it has been useful. I am trying very hard to think about myself more often than previously and I am working much closer to my working hours now and not feeling guilty when I go home on time. Also trying to eat better been making packed lunches for a month now and actually moving away from the computer to eat! Having cancer does make you rethink priorities a little. To be honest there are days and weeks now when I don't even think about having had cancer. My baby boob is beautifully healed - just looks a bit smaller and a bit less full. My nipple is painful to touch occasionally which makes me a bit protective of it but all my scars are pale and becoming very less obvious. I am thinking of going to have my radiotherapy dot in between my boobs lasered off - it sits there constantly looking at me and spoils my cleavage. I think my oncologist though I was mad but she said I could have it done after 6 months! I am glad to read that all is well with you- what did I tell you ! Life goes on- we are the lucky ones!       I would say that everyone forgets fairly quickly what  you have been through, sometimes that is good but sometimes not so. Continue to be very kind to yourself, take holidays spend time with love ones, cherish every day. It was lovely to read that someone else had been helped by our conversations, made me feel very emotional. I don't suppose I will be on here very often now but will post mammogram results in May hopefully all good news. Take care Bernienb and thankyou xx

     

     

  • Hi Fraseh, I was very touched to read that our conversation had been useful to you. Where are you now on your journey? I have found this site so very useful, I am one of those people who has to read and read and read, for me knowledge is power. I know some people prefer to not know but not me! Finding Bernienb and having someone outside of my family and friends to connect with was such a precious thing and I have really loved talking to her and surviving together- I know I always say it but we really are the lucky ones. I hope that all is going well for you , it is a journey of ups and downs, small joys and tough moments but I wish you well. Happy to chat any time xx

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  • Hi Fraseh, I was very touched to read that our conversation had been useful to you. Where are you now on your journey? I have found this site so very useful, I am one of those people who has to read and read and read, for me knowledge is power. I know some people prefer to not know but not me! Finding Bernienb and having someone outside of my family and friends to connect with was such a precious thing and I have really loved talking to her and surviving together- I know I always say it but we really are the lucky ones. I hope that all is going well for you , it is a journey of ups and downs, small joys and tough moments but I wish you well. Happy to chat any time xx

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