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How were you informed you have cancer?

I ask this question as I found out that I had cancer when I opened a letter from the hospital while drinking my morning coffee. The news took some digesting and I was unable to tell anyone 'till my partner got home from work. I am told this is unusual but I have since heard that others have beed told over the phone or called in to see their doctor or asked to come into hospital to discuss the results of their tests. So how did you receive the news that you have cancer?

Parents
  • After hysteroscopy and scans I went back to the hospital for results. The nurse was coming into the waiting room to call patients in but when it came to my turn the consultant, a lovely, kind man, came out and took me in.  He and a specialist nurse told me and spoke to me answering all my questions for about half an hour.

     

  • Hi There how soon after your scans were u given an appointment to go back! I had mri and biopsy last Saturday and this Tuesday just got a letter to go back to gyne not untill 19th November everyone is saying oh must be ok then but I'm not so sure! As it's 3 weeks away 

  • Hi Ossie,

    Pauline hasn’t been logged in for a while, this is a very old thread, so I thought I’d answer. 

    You are right not to read too much into how long you have to wait between scans and appointments,  especially when biopsies have been taken as the results can take around ten days to come back. Waiting times vary depending on how busy the hospital is and on staff availability - especially around school holidays. There’s also a national shortage of diagnostic staff which is slowing things down (CRUK is campaigning on the issue with a public petition).

    I hope the news is good.

    Good luck!

    Save

     

     

Reply
  • Hi Ossie,

    Pauline hasn’t been logged in for a while, this is a very old thread, so I thought I’d answer. 

    You are right not to read too much into how long you have to wait between scans and appointments,  especially when biopsies have been taken as the results can take around ten days to come back. Waiting times vary depending on how busy the hospital is and on staff availability - especially around school holidays. There’s also a national shortage of diagnostic staff which is slowing things down (CRUK is campaigning on the issue with a public petition).

    I hope the news is good.

    Good luck!

    Save

     

     

Children
  • My husband was never told that he had kidney cancer - we read that he had TCCs in his kidney in a discharge notice in June 2019 but really did not understand the implications. A multi disiplinary meeting had decided not to tell him even though he was an inpatient at the time! Instead they made an outpatient appointment for him 8 weeks later in August. At that meeting the Consultant's notes say " Long chat with patient, wife and daughter - no notes available".- so nothing about the kidney cancer. We knew he had non invasive bladder cancer but no treatment for that was given and by the time of the meeting he was too weak for anything. He had also been dehyrated in hospital during his stay which resulted in an acute kidney injury and delirium, so from June to August he had no idea even where he was. In September when he was back in hospital with haematuria, we were finally told it was his kidney which was bleeding not his bladder and he was  sent home to bleed to death. He bled for 80hours and then died.