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Ileostomy reversal after rectal cancer op

Sitesi
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Hi I wondered if anyone can give my husband some advice. Since his reversal in November my husband has been having qute a few problems. Just after the op he was in terrible pain but that appears to have got much better. His biggest problem is having to go to the loo at least 6-7 times straight after eating anything. We have tried leaving out or adding various food but nothin seems to work. The doctor precribed loperamide but he is now taking maximum dose and still nothing changes. Does anyone know of a different drug. The doctor suggested adding codeine but we have been advised by nurses that this could cause more problems. My husband is now virtually housebound unless he starves himself and has nothing to eat or even drink much after getting up until he gets back to the house. We would be grateful for any suggestions.

Parents
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    Hello,

    I had exactly the same problem. Thought it was the things that I was eating etc.

    Would be going about 25 -30 times a day. I was prescribed loperamide also.

    But time is the only healer for this.

    I read initially that it would take up to 2 years to get back to nearly normal---could not believe it.

    But it is true and very slowly you improve, but the improvement is noticeable---- some weeks can be better than others .

    My reversal was now 20 months ago and only go about 4/5 times a day.

    The best thing I found initially was to only eat at home.

    Dont worry things do get better.

    I thought at one time I would ask for a permanent bag things were so bad.

    How long did your husband have a bag --I had one for eleven months.

    I had pain also but that also takes time to go --still get the odd twinge.

    Loperamide will be permanent --i take 6 a day now.

    Good luck,

    John B.

Reply
  • Offline

    Hello,

    I had exactly the same problem. Thought it was the things that I was eating etc.

    Would be going about 25 -30 times a day. I was prescribed loperamide also.

    But time is the only healer for this.

    I read initially that it would take up to 2 years to get back to nearly normal---could not believe it.

    But it is true and very slowly you improve, but the improvement is noticeable---- some weeks can be better than others .

    My reversal was now 20 months ago and only go about 4/5 times a day.

    The best thing I found initially was to only eat at home.

    Dont worry things do get better.

    I thought at one time I would ask for a permanent bag things were so bad.

    How long did your husband have a bag --I had one for eleven months.

    I had pain also but that also takes time to go --still get the odd twinge.

    Loperamide will be permanent --i take 6 a day now.

    Good luck,

    John B.

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