Clear cell ovarian cancer

Hi

I was diagnosed with stage 2 clear cell ovarian cancer a few weeks ago. At the beginning they thought it was stage 1 but after my operation it was discovered that it had spread to a small area of the peritoneum near the cancerous ovary. I had a pelvic sweep last week which means i cant have children now - im 30 and dont have any yet so as you can imagine im absolutely devastated by this. Il be starting chemo (i think carbo/taxol for 6 sessions) in about 4 weeks and im terrified!

I guess i would just like to speak to anybody thats been through or is going through a similar situation to me. Im just finding this all so overwhelming and dont know anyone thats gone through cancer so theres noone i can speak to in real life that could offer any advice. I love my family and friends but none of them know what to say to me when im talking about all of this.

Theres a million things im sad or scared about but i feel like i cant process any of them - whenever i feel better about one thing, another just jumps into its place and i just go round and round in circles!!

So if anyone has any experiences with ovarian cancer (especially if its clear cell) then i would love to hear them - i need to know theres life after this disease because at the moment I feel like im down a deep dark hole and cant get out.

thank you for any replies

  • Hi there, There is a simple answere to your question and that is YES, there is life after. I had ovarian cancer, i was 28, and sorry to say pregnant. It was caught early, I was only at stage 2, however, had two opperations but no other treatment as , much to my consultants horror, I was not going to abort. Had my child at 6months gestation, then started treatment. If you want the truth, the treatment was slow, painful and very exaulsting, but I kept going. I found i had an inner strenght, that Id never had before, treating my self to little pressies and long walks, or chair pushes in the forest all helped. I am now all clear, although cant have any more children, live life to the full and would love to help you further if i can. Do you need help with DLA, the other thing I must tell you is that carrot juice is ment to some how help clense the system, I use to drink about 4 pints a day, different people manage, cope in their own way, but this certainly helped me. Get in touch if i can be of any help, in any area. Wishing you all the best

  • Hello,

    As a male I cant comment on ovarian cancer however can about the experiances and fears.

    I was diagnosed and confirmed on Christmas Eve, had part of my large intestine removed, spent 7 weeks (due to complications) in hospital and am waiting for my radiotherapy and chemo to start.

    I have the fears and explain them to my friends and family. I am very lucky that many of them are prepared to listen and comment as I have kept them up to speed. I started a blog on google which at first was just for me but after several weeks I started to share it. This works quite well as it updates people on my treatment and how I am feeling. It also directs my friends from church on what to pray on and allows focus.

    As a final note before I ramble on too much - remember that we, on this forum, are all in this together. I have had the most amazing support over the past few months and have made some dear friends. The support comes from fellow sufferers, friends and family of sufferers etc. I came on here to gain support but you find yourself reading other peoples requests for help and when ready you may even comment.

    Like I said we are all in this together so keep us informed of any fears and concerns and you will be sure to get some comments

    Kindest Regards

    Tony c

  • Hi there, I have never used this site before, or ever thought I would need too. But here I am, yesterday I was told that I have Clear Cell  Ovarian Cancer and yes very scared as I know it is aggressive. My stage at the moment is1a,. I am very keen to hear from anybody that has this type of cancer. Wishing everyone the best. 

  • Hi, I was recently diagnosed and treated for a borderline ovarian tumour and I found a charity online called Target ovarian cancer, it helped me to read the very positive stories of women that have had every stage of ovarian cancer and have gone on to live very full lives, during my diagnosis, waiting for test results etc reading about other women that had gone through it was very emotionally strengthening for me, hope this helps, sending hugs 

  • Hi there, 
    I hope your treatment is ongoing and you are feeling more positive now. My cousin has been diagnosed few weeks ago with this cancer, stage 1c. She had today another surgery and we will know soon what stage she really is. I would be interested to swap any information with you. 

  • Hi - my sister got diagnosed with this one same stage. I hope everything went good for you xxx